Tag: download





PowerPoint: The Step Up Transition Program

July 31, 2014 – The Cooley’s Anemia Foundation is pleased to provide the following PowerPoint slides which accompanied the presentation on “The Step Up Transition Program” at the 2014 CAF Patient~Family Conference.  Janis R. Beatty and Diane Calamaras of Ann & Robert Lurie Children’s Hospital of Chicago made the presentation at the Conference. The slideshow […]

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PowerPoint: Gene Therapy and Other Curative Approaches

July 30, 2014 – The Cooley’s Anemia Foundation is pleased to provide the following pdf of the PowerPoint slides which accompanied the presentation on “Gene Therapy and Other Curative Approaches” at the 2014 CAF Patient~Family Conference.  Alexis Thompson, MD, of Ann & Robert H. Lurie Children’s Hospital of Chicago, made the presentation at the Conference. You […]

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PowerPoint: Pain and Pain Management in Thalassemia

July 23, 2014 – The Cooley’s Anemia Foundation is pleased to provide the following PowerPoint slides which accompanied the presentation on “Pain and Pain Management in Thalassemia” at the 2013 CAF Patient~Family Conference.  Dru Haines, PNP of The Children’s Hospital Research Center, Oakland, made the presentation at the Conference. The slideshow below can be viewed […]

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PowerPoint: The CHOP-HUP Transition Program – The Philadelphia Experience

July 17, 2014 –  The Cooley’s Anemia Foundation is pleased to provide the following PowerPoint slides which accompanied the presentation on “The CHOP-HUP Transition Program – The Philadelphia Experience” at the 2014 CAF Patient~Family Conference.  Vanessa Nixon, RN, CPN of Children’s Hospital of Philadelphia and Linda Slaven, RN, BSN of The Hospital of the University of Pennsylvania, […]

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PowerPoint: Interim Results from Two Phase 2 Clinical Trials in Adults with Beta-Thalassemia

July 15, 2014 –  The Cooley’s Anemia Foundation is pleased to provide the following PowerPoint slides which accompanied the presentation on “Interim Results from Two Phase 2 Clinical Trials in Adults with Beta-Thalassemia” at the 2014 CAF Patient~Family Conference.  Ellis J. Neufeld, MD PhD, of Boston Children’s Hospital made the presentation at the Conference. The […]

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PowerPoint: Thalassemia Standards of Care

July 15, 2014 –  The Cooley’s Anemia Foundation is pleased to provide the following PowerPoint slides which accompanied the presentation on “Thalassemia Standards of Care” at the 2014 CAF Patient~Family Conference.  Ellis J. Neufeld, MD PhD, of Boston Children’s Hospital made the presentation at the Conference. The slideshow below can be viewed online; however, the […]

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