September 19, 2021 – The Cooley’s Anemia Foundation’s annual Care Walk is finally here, and we are so grateful seeing how many people across the country are Care Walking in honor of individuals with thalassemia. As you know, Care Walk is the Cooley’s Anemia Foundation’s largest annual fundraising event, bringing together the thalassemia community and […]
August 9, 2021 – CAF is sharing a new video created by our social worker Kathleen Durst on Taking Care of Yourself. Access the video here: https://youtu.be/GZyxGsfmuXQ. U.S. thalassemia patients and family members should contact Kathleen at kdurst@thalassemia.org if they wish to learn more about the work that Kathleen does with members of our U.S. […]
July 29, 2021 – CAF is sharing two new videos created by our social worker Kathleen Durst. The first video is is entitled “Managing Thoughts and Emotions,” and can be accessed here: https://www.youtube.com/watch?v=q4_CQcAxv-M. The second video is entitled “Tolerating and Sending Away Physical Pain,” and can be accessed here: https://www.youtube.com/watch?v=0_pNzyL4RAs. U.S. thalassemia patients and family […]
May 24, 2021 – CAF is sharing a new video created by our social worker Kathleen Durst on Understanding and Managing Worry. Watch the video at the following link: https://www.youtube.com/watch?v=NsRqPgs-mFA. U.S. thalassemia patients and family members should contact Kathleen at kdurst@thalassemia.org if they wish to learn more about the work that Kathleen does with members […]
Management of the Non-Transfused Patient Participants at CAF’s 2012 Patient~Family Conference were treated to a broad range of important information on numerous topics. CAF is pleased to share the information from selected presentations through videos which combine the speaker’s audio presentation and accompanying slides. We will post them as they become available. Below, in 3 […]
Iron Levels: How Low Can You Go? Participants at CAF’s 2012 Patient~Family Conference were treated to a broad range of important information on numerous topics. CAF is pleased to share the information from selected presentations through videos which combine the speaker’s audio presentation and accompanying slides. We will post them as they become available. […]
Improving Bone Health in Patients with Thalassemia Participants at CAF’s 2012 Patient~Family Conference were treated to a broad range of important information on numerous topics. CAF is pleased to share the information from selected presentations through videos which combine the speaker’s audio presentation and accompanying slides. We will post them as they become available. Below, […]
Recommendations for Dietary Intake: Focus on Micronutrients Participants at CAF’s 2012 Patient~Family Conference were treated to a broad range of important information on numerous topics. CAF is pleased to share the information from selected presentations through videos which combine the speaker’s audio presentation and accompanying slides. We will post them as they become available. […]
January 27, 2010 – Videos of two presentations from the 9th Cooley’s Anemia Symposium are now available for viewing. The subjects are pulmonary hypertension and clinical trials. Presented in October, 2009 by CAF and the New York Academy of Sciences, the 9th Cooley’s Anemia Symposium was an exciting event that gathered together doctors, scientists, nurses, […]
