May 9, 2016 – Yasmeen Anis, a person with thalassemia, shares her personal story below. CAF thanks Yasmeen for letting us share this story with you. NEGU – Never Ever Give Up – is something Yasmeen’s best friend told her one day, and it’s a motto that she’s kept since that day. Diagnosed with beta […]
February 16, 2016 – Throughout this Care Walk season, we will be highlighting stories of some of the amazing people whose efforts make this event a success for the Cooley’s Anemia Foundation and all the patients we serve. With so many Care Walks taking place on the same day, we hope that these stories will […]
January 5, 2016- The Cooley’s Anemia Foundation is pleased to announce that Aaron Cheng has been named recipient of the 2015 CAF-ApoPharma Distinguished Scholar Award. The Award is presented to U.S. individuals with a clinically significant form of thalassemia who have chosen to pursue postgraduate doctoral level studies in medicine or science. Aaron is currently […]
May 13, 2015 – Amy Long, the mother of a child with thalassemia, has generously shared her experiences with raising her daughter, who was born with thalassemia. CAF thanks Amy for allowing us to post this warm and loving story. Raising a child with thalassemia is both devastating and rewarding. By having a child with […]
March 24, 2015 – Nicole Walsh and Rupert Ho have adopted two children with thalassemia from China. CAF talks with Nicole below about their experience as adoptive parents. CAF: When did you adopt your children? Nicole: We adopted our son, Aaron, when he was 3 years old, and living in an orphanage in Southern China. […]
February 24, 2015 – Tracy Antonelli, an individual with thalassemia, and her husband have adopted three children from China over the past several years. Like Tracy, her adorable daughters have thalassemia. Below, CAF talks with Tracy about her experiences in going through the process of adopting children from another country. CAF: Tell us a little […]
February 23, 2015 – On March 8, Joelle Zarcone will be running in the San Diego Half Marathon to raise money for CAF. Below, CAF talks with Joelle, a person with thalassemia, about her decision to participate in this endurance event. CAF: How did you decide to participate in the San Diego Half Marathon? Joelle: […]
October 9, 2014 – One of the most praised presentations at this year’s CAF Patient~Family Conference was the patient panel, during which several patients shared their experiences in living with thalassemia. Among this year’s participants were Aaron Cheng, Anish Goel, Chi Pham and Jaimee Versace. “In my presentation, I emphasized how important it is for […]
October 4, 2014 – Marsha DeSalvatore understands the saying about making lemonade when life hands you lemons; this talented and vivacious woman has learned to use the fact that she has thalassemia as a way to express herself through comedy and improvisation. In doing so, she helps herself and educates others about what it means […]
September 9, 2014 – Josephine Bila, an individual with thalassemia, has written a book, “Transfusion: A Patient Survival Guide.” CAF speaks with Jo about this project below. CAF: Tell us a little about “Transfusion: A Patient Survival Guide.” What motivated you to write it, what is it about, etc.? Jo: I was born with beta […]
