August 27, 2014 – The Centers for Disease Control and Prevention (CDC)’s social media platform on Flickr has added a new photo and story to its “Personal Stories of People Living with Thalassemia.” The new photo and story, which focuses on Jasvinder Singh, can be viewed by clicking here. The entire album can be accessed […]
January 23, 2013 – Aaron Cheng, a sophomore at Harvard University who has beta thalassemia major, has been awarded a 2012 Scholarship Award from the Asian Pacific Community Fund in association with Verizon. He is one of five recipients in this awards cycle. The Asian Pacific Community Fund partners with Verizon to financially assist students […]
October 19, 2012 – When Heather and Aaron Ayris decided to welcome a nine-year old boy with thalassemia into their home for six weeks, they hoped their hospitality would help improve his health. They wanted to show their guest a good time and lift his spirit. But it’s the Ayris family whose lives were changed […]
December 11, 2012 – Alyssa Altieri says, that without a doubt, her mom, Sandy is her best friend. Since Alyssa was diagnosed with thalassemia at just five months old, Sandy has been there for her every day. “She has taken care of me every step of the way,” 25-year-old Alyssa explained. “She has handled all […]
June 12, 2012 – Robert Mannino knows more about blood transfusions than most people. Diagnosed with thalassemia when he was just six months old, he’s spent much of his life in clinics, hooked up to transfusion machines for treatment of the disorder Now 20 years old and a junior at the Georgia Institute of Technology […]
April 6, 2012 – My name is Aaron Cheng, and I’ve just completed my first semester of college at Harvard University. I don’t remember when I was diagnosed with beta thalassemia major, which is also known as Cooley’s Anemia, but my parents tell me it was when I was around one year old. We were […]
Look around 10-year-old Julia Tang’s house and you’ll see dozens of her pencil drawings on the walls — a menagerie of animals, fruits and treasured objects. Listen and you’ll hear her playing spirited music on the piano in her parents’ living room. Ask young Julia about what her favorite subject at school, and she doesn’t […]
February, 2012 – Rahul Kapoor is the sole member of his immediate family with thalassemia – but his entire family shoulders the struggle. They’ve rallied around him and supported one another since he was diagnosed with the blood disorder when he was four years old. Now nineteen, Rahul is a sophomore at the University of […]
January, 2012 – It’s always difficult being a first-time parent – but when your baby is diagnosed with a blood disorder like thalassemia, life is immediately even harder. That’s what happened when Teresa and Joe Turchi’s four-and-a-half month old daughter Gabriella was diagnosed with thalassemia at the Children’s Hospital of Philadelphia. “We were devastated and […]
On August 5, Radhika Sawh, former CAF Patient Services Director, appeared on Fox 5 ‘s Good Day New York during a segment about the need for blood donations. She discussed thalassemia and her experience with it. For those who missed it, the clip is still up here.
