Patients in the News

Thalassemia Patient Awarded Asian Pacific Community Fund Scholarship

January 23, 2013 – Aaron Cheng, a sophomore at Harvard University who has beta thalassemia major, has been awarded a 2012 Scholarship Award from the Asian Pacific Community Fund in association with Verizon. He is one of five recipients in this awards cycle. The Asian Pacific Community Fund partners with Verizon to financially assist students […]

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"Researching a Better Way" – Patient Profile of Robert Mannino

June 12, 2012 – Robert Mannino knows more about blood transfusions than most people. Diagnosed with thalassemia when he was just six months old, he’s spent much of his life in clinics, hooked up to transfusion machines for treatment of the disorder Now 20 years old and a junior at the Georgia Institute of Technology […]

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"Trying New Things Every Day" – Patient Profile of Aaron Cheng

April 6, 2012 – My name is Aaron Cheng, and I’ve just completed my first semester of college at Harvard University. I don’t remember when I was diagnosed with beta thalassemia major, which is also known as Cooley’s Anemia, but my parents tell me it was when I was around one year old. We were […]

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Young Julia’s Newfound Energy

Look around 10-year-old Julia Tang’s house and you’ll see dozens of her pencil drawings on the walls — a menagerie of animals, fruits and treasured objects. Listen and you’ll hear her playing spirited music on the piano in her parents’ living room. Ask young Julia about what her favorite subject at school, and she doesn’t […]

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"A Brighter Future, Day by Day"

January, 2012 – It’s always difficult being a first-time parent – but when your baby is diagnosed with a blood disorder like thalassemia, life is immediately even harder. That’s what happened when Teresa and Joe Turchi’s four-and-a-half month old daughter Gabriella was diagnosed with thalassemia at the Children’s Hospital of Philadelphia. “We were devastated and […]

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