November 19, 2012 – CAF is pleased to share the information from selected presentations from the 2012 CAF Patient~Family Conference. We are posting here the presentation on “Improving Bone Health in Patients with Thalassemia.” More videos will be posted as they become available. Check back at this website for information on the 2013 Patient~Family […]
November 13, 2012 – CAF is pleased to share the information from selected presentations from the 2012 CAF Patient~Family Conference. Because we have recently received questions concerning nutrition, we are posting here the presentation on “Recommendations for Dietary Intake: Focus on Micronutrients.” More videos will be posted as they become available. Check back at this […]
July17, 2012 Memorial Sloan-Kettering Cancer Center will begin evaluating a new stem-cell-based gene therapy for patients with the inherited blood disorder beta (β)-thalassemia. The clinical trial is the first to receive US Food and Drug Administration approval to treat this disease with genetically engineered cells and is a culmination of more than two decades of […]
February 1, 2012 – CAF Medical Advisory Board Chair Ellis Neufeld, MD, answers some of the questions which have been forwarded to CAF by individuals with thalassemia intermedia. CAF: Why don’t intermedias qualify for bone marrow transplants, even if the diagnosis changes to major? EN: Bone marrow transplantation can be a dangerous endeavor, and the […]
