info thalassemia

Health Maintenance for Thalassemia Patients aged 50 Years and Older

Health Maintenance Award for Thalassemia Patients 50 years and older

The Cooley’s Anemia Foundation (CAF) recognizes the importance of maintaining health among thalassemia patients and is offering reimbursement of up to $500 for approved expenses related to health maintenance among U.S. thalassemia patients who are age 50 or older.

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Travel Support to Treatment Centers for Thalassemia Patients

Travel Support for Thalassemia Patients

The Cooley’s Anemia Foundation (CAF) offers travel support to treatment centers to Thalassemia patients. We’re offering limited financial assistance to individuals with thalassemia who experience financial hardship due to travel expenses incurred in obtaining an annual comprehensive care evaluation or extraordinary thalassemia care at a major treatment center.

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Presentations from 2019 CAF Patient-Family Conference

January 23, 2020 – CAF is pleased to share several of the presentations made at the 2019 CAF Patient-Family Conference, which took place from July 12-14 in San Francisco, CA. Click on the links below to download the presentations. Fetal Therapy for Alpha and Beta Thalassemia Major – Tippi Mackenzie, MD Issues in Health Insurance: […]

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Thalassemia Management Checklists Now Available for Download

May 31, 2018 – CAF is pleased to share three new thalassemia management checklists, which are available for download by clicking the links below. These Checklists were developed by Dr. Janet Kwiatkowski, Dr. Ashutosh Lal, and Dr. Sujit Sheth with editorial input from CAF as part of a grant project supported by the Health Resources […]

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The Man Behind the Name: Thomas Benton Cooley, M.D.

September 19, 2016 – People often ask why the major form of beta thalassemia is known as Cooley’s anemia. Beta thalassemia major is widely referred to as Cooley’s anemia in reference to Dr. Thomas Benton Cooley, the renowned researcher who discovered the disorder. Thomas Benton Cooley was an American physician specializing in pediatrics and hematology. […]

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Q&A with Dr. Jeanne Boudreaux

November 9, 2014 – CAF periodically receives questions from patients on a wide range of topics related to thalassemia and its treatment. We have shared a few of these questions with Jeanne Boudreaux, MD, of Children’s Healthcare of Atlanta. We thank Dr. Boudreaux for sharing her expertise with us and with the thalassemia community. If […]

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CAF Posts New “Guide to Living with Thalassemia” for Download

September 27, 2013 – CAF is pleased to make available to the thalassemia community an important new publication, A Guide to Living with Thalassemia, which can be downloaded by clicking here. (Please note that this document is 115 pages and may take some time to download.) A Guide to Living with Thalassemia is designed to provide […]

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Check Out These TIF Publications

May 31, 2013 – CAF is proud to be part of the international thalassemia community and of the Thalassaemia International Federation (TIF). While thalassemia affects a relatively small population here in the United States, its global impact is substantial: In some parts of the world, carrier rates can be astonishingly high, with some regions of […]

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Click on the links below for more information that may be of interest to the thalassemia community. Thalassaemia International Federation (TIF) October 2013 TIF Conferences    

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Iron Levels – How Low Can You Go Presentation

January 28, 2013 – CAF is pleased to share the information from selected presentations from the 2012 CAF Patient~Family Conference. We are posting here the presentation on “Iron Levels: How Low Can You Go?” More videos will be posted as they become available. Stay tuned for information on the 2013 Patient~Family Conference. It will be […]

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