info thalassemia
Tuesday, June 27th, 2023
The Cooley’s Anemia Foundation (CAF) recognizes the importance of maintaining health among thalassemia patients and is offering reimbursement of up to $500 for approved expenses related to health maintenance among U.S. thalassemia patients who are age 50 or older.
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: Front Page, info thalassemia, News, Patients in the News, person with thalassemia
: beta-thalassemia, Cooley's anemia, cooleys anemia foundation, health maintenance, patient care, patients, reimbursement, thalassemia, thalassemia care, thalassemia major, thalassemia patients
Monday, June 26th, 2023
The Cooley’s Anemia Foundation (CAF) offers travel support to treatment centers to Thalassemia patients. We’re offering limited financial assistance to individuals with thalassemia who experience financial hardship due to travel expenses incurred in obtaining an annual comprehensive care evaluation or extraordinary thalassemia care at a major treatment center.
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: Front Page, info thalassemia, Links, News, person with thalassemia
: Cooley's anemia, financial, patient care, patients, registration, thalassemia, thalassemia patients, travel insurance
Thursday, January 23rd, 2020
January 23, 2020 – CAF is pleased to share several of the presentations made at the 2019 CAF Patient-Family Conference, which took place from July 12-14 in San Francisco, CA. Click on the links below to download the presentations. Fetal Therapy for Alpha and Beta Thalassemia Major – Tippi Mackenzie, MD Issues in Health Insurance: […]
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: Events, info thalassemia, News, Patient-Family Conference, person with thalassemia, Upcoming Events
: presentation, registration
Thursday, May 31st, 2018
May 31, 2018 – CAF is pleased to share three new thalassemia management checklists, which are available for download by clicking the links below. These Checklists were developed by Dr. Janet Kwiatkowski, Dr. Ashutosh Lal, and Dr. Sujit Sheth with editorial input from CAF as part of a grant project supported by the Health Resources […]
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: info thalassemia, News
Tuesday, September 13th, 2016
September 19, 2016 – People often ask why the major form of beta thalassemia is known as Cooley’s anemia. Beta thalassemia major is widely referred to as Cooley’s anemia in reference to Dr. Thomas Benton Cooley, the renowned researcher who discovered the disorder. Thomas Benton Cooley was an American physician specializing in pediatrics and hematology. […]
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: Blog, info foundation, info thalassemia
Monday, November 10th, 2014
November 9, 2014 – CAF periodically receives questions from patients on a wide range of topics related to thalassemia and its treatment. We have shared a few of these questions with Jeanne Boudreaux, MD, of Children’s Healthcare of Atlanta. We thank Dr. Boudreaux for sharing her expertise with us and with the thalassemia community. If […]
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: Blog, info thalassemia, News, person with thalassemia
: Q&A
Friday, September 27th, 2013
September 27, 2013 – CAF is pleased to make available to the thalassemia community an important new publication, A Guide to Living with Thalassemia, which can be downloaded by clicking here. (Please note that this document is 115 pages and may take some time to download.) A Guide to Living with Thalassemia is designed to provide […]
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: Blog, info thalassemia, medical professional, News, person with thalassemia
: Cooley's anemia, guide, publication, thalassemia
Friday, May 31st, 2013
May 31, 2013 – CAF is proud to be part of the international thalassemia community and of the Thalassaemia International Federation (TIF). While thalassemia affects a relatively small population here in the United States, its global impact is substantial: In some parts of the world, carrier rates can be astonishingly high, with some regions of […]
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: Blog, info thalassemia, News, person with thalassemia
: Thalassaemia International Federation, TIF
Wednesday, January 30th, 2013
Click on the links below for more information that may be of interest to the thalassemia community. Thalassaemia International Federation (TIF) October 2013 TIF Conferences
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: info thalassemia
Monday, January 28th, 2013
January 28, 2013 – CAF is pleased to share the information from selected presentations from the 2012 CAF Patient~Family Conference. We are posting here the presentation on “Iron Levels: How Low Can You Go?” More videos will be posted as they become available. Stay tuned for information on the 2013 Patient~Family Conference. It will be […]
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: info thalassemia, medical professional, News, person with thalassemia