January 15, 2009 – The Thalassemia Clinical Research Network (TCRN) presented a poster on Hemoglobin H-Constant Spring , a form of alpha-thalassemia, at the annual meeting of the American Society of Hematology (ASH) in December. The poster, entitled “Hemoglobin H-Constant Spring in North America: A Common Alpha Thalassemia with Frequent Complications,” reported on a […]
January 12, 2009 – Memorial-Sloan Kettering Cancer Center will present a forum, “Treating Thalassemia: From Transfusion to Engineered Stem Cells,” on February 5, 2009, from 2:00-5:30 p.m. This symposium is intended for physicians, researchers, patients and patient advocates. The forum will be divided into two sections. The first half, from 2:00-3:30, will focus on”Current Therapies for […]
January 9, 2009 – Start working on those dance moves – the 21st Annual “Let Your Heart Dance” is coming February 14. The Staten Island and New Jersey chapters will once again hold the “Let Your Heart Dance” at the beautiful Hilton Garden Inn in Staten Island. A knock-out cocktail reception kicks things off at 7:30, […]
January 8, 2009 – Nowadays, it seems it’s always rush, rush, rush – so as long as you’re running, why not do like some CAF supporters in Arizona and use all that running to fight thalassemia? Thirteen wonderful young people, including kindergarteners on one end of the age scale and a college student on the […]
January 4, 2009 Written by Craig Butler. Art by John Thornton. Copyright 2009 by Cooley’s Anemia Foundation Next episode to be posted: January 19, 2009 For episode 3, click here. For episode 2, click here. For episode 1, click here. Funding for Thal Pals comes from an unrestricted educational grant from Novartis Pharmaceuticals.
December 22, 2008 Written by Craig Butler. Art by John Thornton. Copyright 2008 by Cooley’s Anemia Foundation Next episode to be posted: January 5, 2009 Funding for Thal Pals comes from an unrestricted educational grant from Novartis Pharmaceuticals.
December 17, 2008 – The Ninth Cooley’s Anemia Symposium, sponsored by the Cooley’s Anemia Foundation and the New York Academy of Sciences, has announced an August 14, 2009 deadline for submission of poster abstracts. The Symposium will be held October 21-24, 2009 in New York City and is organized by Elliott Vichinsky, MD and Ellis […]
December 17, 2008 – On March 14, 2009, the Southeast District of the New Jersey Elks will hold “Miracle Plunge II: Freezin’ for a Reason” to benefit CAF and the Elks Camp Moore. Participants will embrace the bracing (but hopefully thawed!) waters at 5th Avenue and Ocean in Belmar, NJ at noon that day. […]
December 16, 2008 – The National Institutes of Health (NIH) Roadmap has established a pilot program called the NIH-RAID Pilot (Rapid Access to Interventional Development), similar to the National Cancer Institute’s (NCI) RAID program, to make available, on a competitive basis, certain critical resources needed for the development of new small molecule therapeutic agents. This […]
December 16, 2008 – The Cooley’s Anemia Foundation announces a new RFA in the area of gene therapy for thalassemia. The purpose of this initiative is to speed the application of recent translational advances in gene therapy to clinical trials. The foundation recognizes that there are many key areas worthy of support in the search […]
