This blog will be a place for the Cooley’s Anemia Foundation to share information from and thoughts of invited members of the thalassemia community.
July 7, 2015 – The Cooley’s Anemia Advocacy Forum (CAAF) is a Cooley’s Anemia Foundation project aimed at helping thalassemia patients and families learn how to make their voices heard on federal issues of importance to the thalassemia community. (A brochure about CAAF can be downloaded by clicking here.) Following is a report from Lyle Dennis […]
June 28, 2015 – Watch the NY Yankees play the Toronto Blue Jays from great seats while supporting CAF! The Queens chapter of CAF has seats in the Audi Yankees Club at Yankee Stadium for the August 7 game. Details about this very special offer are below. Contact John Mancino at 516-805-3070 with questions.
June 22, 2015 – The Cooley’s Anemia Foundation is accepting applications from individuals with thalassemia for the 2015 CAF ApoPharma Distinguished Scholar Award. The CAF-ApoPharma Distinguished Scholar Award, which was established last year, is made possible through a grant from pharmaceutical manufacturer ApoPharma. CAF will award up to two scholarships to a U.S. citizen(s) with a clinically significant […]
June 18, 2015 – The Cooley’s Anemia Foundation wishes to acknowledge those companies which have provided funding support for this year’s Patient-Family Conference June 26-28. Those companies are ApoPharma, bluebird bio, Novartis and Sangamo. This funding is crucial in enabling CAF to present this Conference, which shares so much valuable information with our patients and […]
June 11, 2015 – Anthony C. Laurino, CAF’s National Fundraiser Advisor and a mainstay of the Suffolk chapter for many years, is being honored at the chapter’s annual Gift of Life Ball on June 18. This wonderful evening takes place at Villa Lombardi ‘s at 877 Main Street in Holbrook, NY, starting at 7:00 p.m. Black tie […]
June 8, 2015 – Let your inner artist out at the “Cooley’s Anemia Paint Party” on June 20! The Long Island chapter of CAF will hold this enjoyable event from 7:00 to 10:00 p.m. at the New Hyde Park Elks Lodge, 901 Lakeville Road, New Hyde Park, NY. You don’t have to be an experienced […]
May 19, 2015 – A big shout out to the Giuseppe Verdi Lodge of OSIA, who continue to be among our most consistent supporters and boosters! Their Care Walk this year raised more than $950. We appreciate the love and support of all the brothers and sisters of OSIA.
May 13, 2015 – Cut the deck and get ready for fun! Life Quality BMW’s Annual Texas Hold ‘Em Tournament and Fundraiser for Cooley’s Anemia will be held Thursday, May 21 at Life Quality BMW, 6223 2nd Ave in Brooklyn, NY! Check-in is at 6:30 and the start time is 7:00. For details, visit https://www.firstgiving.com/fundraiser/lifequalitybmw/Texasholdem2015.
May 13, 2015 – Amy Long, the mother of a child with thalassemia, has generously shared her experiences with raising her daughter, who was born with thalassemia. CAF thanks Amy for allowing us to post this warm and loving story. Raising a child with thalassemia is both devastating and rewarding. By having a child with […]
May 13, 2015 – The Thalassaemia International Federation (TIF) has announced the winners of its “Living with Thalassemia” Video Challenge Contest. Those winners are: Winner of the First Prize – 500 USD Marsha De Salvatore for the video “Comedy Therapy” Description: The inspiring story of a patient and a stand-up comedian who talks about […]
