June 29, 2016- Daniella Macolino is a 24 year old actress who pursues her dreams each day while living, and thriving, with thalassemia major. CAF thanks Daniella for allowing us to share her inspiring story. When I was four months old, my family and I were on vacation in Vermont when my mom noticed I […]
June 27, 2016 – We are proud to recognize this last week of June as Thriving With Thal week, when we celebrate the tenacity of thalassemia patients around the world. While living with thalassemia comes with many challenges, patients find ways to thrive every day. Join us on Facebook, Twitter, or Instagram by tagging a […]
June 20, 2016 – 14 years ago CAF ran a story about two siblings (Mia and Teddy Xyloportas) whose thalassemia was cured through a bone marrow transplant. They were fortunate that their sister Marcella was a match for both of them and was able to donate bone marrow for a successful BMT. (You can download […]
May 9, 2016 – Yasmeen Anis, a person with thalassemia, shares her personal story below. CAF thanks Yasmeen for letting us share this story with you. NEGU – Never Ever Give Up – is something Yasmeen’s best friend told her one day, and it’s a motto that she’s kept since that day. Diagnosed with beta […]
May 6, 2016 – Celgene in partnership with Acceleron is currently conducting a Phase 3 study of the protein luspatercept in beta-thalassemia called The BELIEVE Study. Previous studies indicate that luspatercept helps increase the production of mature red blood cells. In a Phase 2 study of adult patients with beta-thalassemia, luspatercept was shown to increase hemoglobin levels and to decrease […]
May 6, 2016 – In honor of International Thalassemia Day (May 8), the Centers for Disease Control and Prevention (CDC) has posted information about thalassemia on their website and a new profile of a thalassemia patient on their Flickr album. You can view the CDC page by clicking here and the new profile of Yanyi […]
May 5, 2016 – The Staten Island chapter of CAF held its annual golf outing on May 4 and the event was a definite hole-in-one. More than 130 people attended this wonderful day on the links at the South Shore Golf Club. The weather was cloudy, but spirits were sunny and shiny and a splendid […]
