Market Research Firm Looking for Thalassemia Patients

April 13, 2009 – CAF was forwarded the following information from Adept Consumer Testing, a market research firm.

CAF is providing this for informational purposes only and does not endorse any specific market research projects.

The Foundation does not ask for or seek any financial remuneration for posting this information; we provide this service in the event that any individual patients have an interest in participating.

Please be advised that many market research projects are likely to be conducted on behalf of a for-profit company, such as a member of the pharmaceutical industry.

“Adept Consumer Testing, a national market research firm, is looking for patients diagnosed with sickle cell disease, thalassemia major or myelodysplastic syndromes who are currently undergoing blood transfusions on a regular basis. We (Adept Consumer Testing) are holding discussions regarding treatments.

“These groups will last approximately 2 hours, the week of April 13th in the Beverly Hills area. A generous honorarium will be provided to all those that qualify and participate.

“If you were diagnosed with any of these conditions and would like to participate, please contact Adept Consumer Testing at the following phone number.

“Ade @ 818-905-9666 ext 356.

“All information will be kept confidential and will not be used or sold for any other purposes. Adept will always abide by HIPAA laws and will never share PII (Personal Identifiable Information).”

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