Patient Stories


Meet Brianna: High School Senior and Care Walk Captain

Monday, March 20th, 2017

March 20, 2017- Throughout this Care Walk season, we are highlighting stories of some of the amazing people whose efforts make this event a success for the Cooley’s Anemia Foundation and all the patients we serve. With so many Care Walks taking place on the same day, we hope that these stories will invite us […]

CAF Accepting Video Submissions for #ThrivingWithThal

Friday, March 17th, 2017

  March 17, 2017 – While living with thalassemia comes with many challenges, patients find ways to thrive every day. Over the coming weeks, we will be sharing the stories of inspiring individuals who are #ThrivingWithThalassemia despite the obstacles that can sometimes feel overwhelming. To share your story, record a short video following the CAF […]

Patient Profile: Lisa Guidice, Proud Jersey Girl #ThrivingWithThal

Tuesday, February 21st, 2017

February 21, 2017- Lisa Falco Guidice is an active member of the CAF patient community, and we thank her for sharing her inspiring story. I am a proud Jersey girl, born in Summit and raised in Florham Park.  After being diagnosed with thalassemia major at 6 months old, my mother did everything she could to […]

Janelle Trieu Selected for 2016 CAF-ApoPharma Distinguished Scholar Award

Wednesday, January 11th, 2017

January 11, 2017- The Cooley’s Anemia Foundation is pleased to announce that Janelle Trieu has been named recipient of the 2016 CAF-ApoPharma Distinguished Scholar Award. The Award is presented to U.S. individuals with a clinically significant form of thalassemia who have chosen to pursue postgraduate doctoral level studies in medicine or science. Janelle is currently […]

Volunteer Spotlight: Maria Saradpon and Erica Martinez

Wednesday, September 21st, 2016

September 21, 2016 – In honor of World Gratitude Day, CAF is pleased to launch our “Volunteer Spotlight” series to highlight the stories of some the many selfless volunteers who play a major role in making our work possible. We are truly grateful for all of the love and heart-felt effort each of our volunteers […]

Patient Profile: Daniella Macolino, Actress Living Her Dreams

Wednesday, June 29th, 2016

June 29, 2016- Daniella Macolino is a 24 year old actress who pursues her dreams each day while living, and thriving, with thalassemia major. CAF thanks Daniella for allowing us to share her inspiring story. When I was four months old, my family and I were on vacation in Vermont when my mom noticed I […]

Patient Profile: A New Life

Tuesday, June 21st, 2016

June 20, 2016 – 14 years ago CAF ran a story about two siblings (Mia and Teddy Xyloportas) whose thalassemia was cured through a bone marrow transplant. They were fortunate that their sister Marcella was a match for both of them and was able to donate bone marrow for a successful BMT. (You can download […]

Patient Profile: Yasmeen Anis, “Never Ever Give Up”

Tuesday, May 10th, 2016

May 9, 2016 – Yasmeen Anis, a person with thalassemia, shares her personal story below. CAF thanks Yasmeen for letting us share this story with you. NEGU – Never Ever Give Up – is something Yasmeen’s best friend told her one day, and it’s a motto that she’s kept since that day. Diagnosed with beta […]

Why The Daileys Care Walk: Thalassemia Doesn’t Define You

Tuesday, February 16th, 2016

Throughout this Care Walk season, we will be highlighting stories of some of the amazing people whose efforts make this event a success for the Cooley’s Anemia Foundation and all the patients we serve. With so many Care Walks taking place on the same day, we hope that these stories will invite us all in […]

Aaron Cheng Selected for 2015 CAF-ApoPharma Distinguished Scholar Award

Tuesday, January 5th, 2016

January 5, 2016- The Cooley’s Anemia Foundation is pleased to announce that Aaron Cheng has been named recipient of the 2015 CAF-ApoPharma Distinguished Scholar Award.  The Award is presented to U.S. individuals with a clinically significant form of thalassemia who have chosen to pursue postgraduate doctoral level studies in medicine or science. Aaron is currently […]