March 29, 2019 – CAF is so proud of Daniela Ciriello, who at only 6 years old is doing so much to raise awareness about thalassemia. Daniela has the blood disorder beta thalassemia major and must receive blood transfusions every three weeks to survive. But she doesn’t let her thalassemia stop her from dreaming and […]
November 9, 2017 – CAF is proud to celebrate Global Adoption Day today and National Adoption Month throughout the month of November! Our goals are to bring attention to the need for permanent families for children with thalassemia both in the U.S. and globally, to provide the greater community with resources and information on thalassemia […]
October 19, 2017 –The University of California, San Francisco (UCSF) is currently recruiting participants for the first ever clinical trial performing in utero stem cell transplantations on fetuses affected with alpha-thalassemia major (ATM). CAF speaks with Dr. Tippi MacKenzie, a pediatric and fetal surgeon at UCSF Benioff Children’s Hospital who is leading this clinical trial […]
August 15, 2017 – CAF thanks Greenwich Time for helping raise awareness about thalassemia through this interview with Peter Chieco, former CAF National President and current President of the Westchester, Rockland and Fairfield County Chapter of CAF. Mr. Chieco has been a selfless volunteer for nearly three decades, and we thank him for his unwavering […]
Dr. Maria Domenica Cappellini presented at the 10th Cooley’s Anemia Symposium on “Clinical Features of Thalassemia.” CAF spoke with her at the Symposium about this topic; that interview can be viewed above. The range of topics presented over the course of the Symposium was impressive and indicates just how active and vital the thalassemia […]
Dr. Ellen Fung presented at the 10th Cooley’s Anemia Symposium on “Nutrition for Patients with Thalassemia.” CAF spoke with her at the Symposium about this topic; that interview can be viewed above. The range of topics presented over the course of the Symposium was impressive and indicates just how active and vital the thalassemia field […]
Dr. Vip Viprakasit presented at the 10th Cooley’s Anemia Symposium on “When to Transfuse in Patients with Non-transfusion-dependent Thalassemia.” CAF spoke with him at the Symposium about this topic; his interview can be viewed above. The range of topics presented over the course of the Symposium was impressive and indicates just how active and vital […]
June 8, 2011 – CAF speaks with Dr. Patricia A. Shi, who runs the adult hemoglobinopathy program at Mt. Sinai Medical Center in New York City. CAF: How many thalassemia patients are seen at the Mt Sinai thalassemia program? PS: We have always been known as one of the comprehensive sickle cell programs in […]
June 7, 2011 – Physical fitness is important for all individuals, including those with thalassemia. Some individuals with thalassemia have a difficult time keeping fit, for a variety of reasons – lack of time, lack of energy, concerns about how a fitness regime can affect them, etc. John Zuke is an individual with thalassemia who […]
October 12, 2010 – An interview with Sir David Weatherall, focusing on his work in thalassemia, can be found in the October 12, 2010 edition of the New York Times. The interview was written by Claudia Dreifus from conversations with Sir David during his recent visit to New York to accept the Lasker-Koshland Special Achievement […]
