November 10, 2020 – Cooley’s Anemia Foundation is hosting a special webinar on Saturday, November 21 at 1:00 pm (Eastern) on “COVID-19 and Thalassemia.” Many members of the U.S. thalassemia community have questions about COVID-19 itself and in what ways it might affect individuals with thalassemia. This webinar is designed to answer some of those […]
August 18, 2020 – Many parents of children with thalassemia are concerned about whether their child should attend school in person if they live in a district in which in person classes is an option. There is no one simple answer to this question. Many factors must be considered, including: whether the child lives in […]
June 25, 2020 – The Thalassaemia International Federation’s (TIF’s) position statement on COVID-19 and Thalassemia has just been published in the European Journal of Haematology. You can access the position statement here: https://www.thalassemia.org/wp-content/uploads/2020/06/COVID-19-and-Thalassaemia-A-Position-Statement-of-the-Thalassaemia-Int….pdf The article notes that “The optimization of blood use will help safeguard blood supplies during the pandemic…One particular aspect of optimizing blood […]
June 16, 2020 – Dr. Maria-Domenica Cappellini of the University of Milan, Italy, recently presented the following data showing the outcomes of COVID-19 infection in a cohort of 11 patients with thalassemia from Northern Italy. These 11 Italian thalassemia patients experienced relatively mild to moderate COVID-19 disease. All the patients had thalassemia-related comorbidities. 53.5% of […]
June 5, 2020 – The American Society of Hematology (ASH) recently created a Research Collaborative (RC) COVID-19 Registry to collect de-identified data on patients with a positive COVID-19 diagnosis and a hematologic malignancy. This global Registry has now been expanded to accept data for COVID-19 patients with ANY hematologic condition, including thalassemia. Healthcare providers can […]
May 12, 2020 – The Centers for Disease Control and Prevention (CDC) has issued revised guidance indicating that people with Hemoglobin Disorders – including thalassemia and sickle cell disease – may be at higher risk for severe illness from COVID-19. They suggest that patients with thalassemia: (1) Ask their healthcare providers about telemedicine or remote […]
April 21, 2020 – TIF has created a Position Statement in which it encourages national health authorities worldwide to include patients with thalassemia and sickle cell disease in the group of patients considered high risk/vulnerable to COVID-19. It is hoped that such a request will lead to increased vigilance and prevention measures on behalf of […]
April 16, 2020 – TIF and the European Hematology Association (EHA) held a webinar today (Thursday, April 16) entitled ”Thalassaemia/SCD and COVID-19: Possible risks and a proposal for a patient pathway during the pandemic”. An expert panel from Italy and Cyprus which includes Dr. Maria D. Capellini, Dr. Raffaella Colombatti, and TIF Executive Director Dr. Androulla Eleftheriou, shared […]
April 14, 2020 – The Thalassaemia International Federation (TIF) has developed this new brochure which provides a listing of many of the vaccines and therapeutic drugs that are currently in development for the treatment/prevention of COVID-19. Download the brochure below.
April 10, 2020 – TIF has prepared a publication on Blood and COVID-19 which we are sharing with the thalassemia community here in the U.S. We thank TIF for making this available to the community and the general public. Download the brochure below.
