May 8, 2020 – International Thalassemia Day is commemorated each May 8th in order to raise awareness about thalassemia. On this very special day for our community, we pause to remember our friends who are no longer with us. We also celebrate all patients who are trying to live their best lives while managing the […]
April 6, 2020 – In light of new evidence showing that some individuals who have been infected with the novel Coronavirus may not exhibit symptoms, but may still be able to infect other people, the Centers for Disease Control and Prevention (CDC) now recommends that people wear cloth face coverings in public settings where other […]
April 1, 2020 – Apple has released a “COVID-19 Screening Tool” that allows users to screen themselves or loved ones for coronavirus symptoms, and to receive recommendations from the Centers for Disease Control and Prevention (CDC) on what to do next. The tool was developed in partnership with the CDC, the White House’s coronavirus task […]
March 13, 2020 – CAF is aware that the Coronavirus Disease (COVID-19) pandemic is causing significant concern within the thalassemia community, and we are closely monitoring new developments in the U.S. The Centers for Disease Control and Prevention (CDC) have issued guidance for people who are at higher risk for serious illness from COVID-19, such […]
March 9, 2020 – The American Red Cross has issued a statement about Coronavirus Disease (COVID-19) which notes that: “there have been no reported blood transfusion transmissions of respiratory viruses including coronaviruses and influenza-like viruses worldwide at this time.” While the risk of contracting any coronavirus through a blood transfusion is extremely low, the American […]
February 25, 2020 – Coronavirus Disease 2019 (COVID-19) is a respiratory illness caused by the virus SARS-CoV-2. This disease was first identified in Wuhan, China in December of 2019. As of February 25th, 2020, the virus has been found in affected individuals in over 3 dozen countries. The virus is spread between people by small […]
May 28, 2019 – We invite you to read about Amy Pizzulli’s journey with thalassemia at the following link: https://www.cdc.gov/ncbddd/thalassemia/stories.html. CAF thanks Amy for sharing her personal story with the thalassemia community.
May 8, 2019 – International Thalassemia Day – which is commemorated each May 8th – is a very special day for our thalassemia community. On this day, we pause to remember our friends who are no longer with us. We also celebrate all patients who are trying to live their best lives while managing the […]
January 28, 2019 – CAF Medical Advisory Board Chair Janet Kwiatkowski, MD, MSCE, will be the featured expert on the CDC’s Thalassemia Management webinar on February 28 from 2pm-3pm. During this webinar, Dr. Kwiatkowski will provide an overview of current, recommended treatments for people with thalassemia, with an emphasis on transfusion-dependent thalassemia. She will discuss […]
May 8, 2018 – In honor of International Thalassemia Day (May 8), the Centers for Disease Control and Prevention (CDC) has posted information about thalassemia on their website and a new profile of CAF Board Member Maria Hadjidemetriou on their website. You can view this page by clicking here . CAF thanks the CDC for their support […]
