TAG Conference Agenda Available
April 6, 2011 – A wide range of fascinating presentations and workshops is on the agenda for the 2011 TAG Patient/Family Conference, June 24-25 at the Disneyland Paradise Pier Hotel in Anaheim, California. (Click here for information about hotels.)
The agenda for the conference is as follows:
| Friday, June 24 7:00 – 9:00 p.m. – Welcome Social with Surprise Special Guest at Disneyland Paradise Pier Hotel | ||
| AGENDA: TAG Patient/Family Conference, June 25, 2011 | ||
| 7:00 a.m. – 7:55 a.m. | Registration and Breakfast | |
| 8:00 a.m. – 8:10 a.m. | Welcome by Laurice Levine | |
| 8:10 a.m. – 8:30 a.m. | The Future of the Cooley’s Anemia Foundation by Anthony Viola, CAF National President | |
| 8:30 a.m. – 9:30 a.m. | Comprehensive Care & Standards of Care | Elliott Vichinsky, MD |
| 9:30 a.m. – 10:30 a.m. | Science of Blood Transfusion & Safety | Yelena Ginzburg, MD |
| 10:30 a.m. – 11:55 a.m. | Iron Measurement and What It Means Chelation Options and Availability Chelation and Toxicity | John Wood, MD Thomas Coates, MD Ellis Neufeld, MD |
| 12:00 p.m. – 1:00 p.m. | Lunch and Awards Honorees: Dr. Farid Boulad and Huythong Nguyen | |
| 1:05 p.m. – 2:35 p.m. | Track 1 | |
| 1:05 p.m. – 1:35 p.m. | Fertility and Thalassemia | Titi Singer, MD |
| 1:35 p.m. – 2:05 p.m. | Endocrine Care | Maria Vogiatzi, MD |
| 2:05 p.m. – 2:35 p.m. | Cardiac Care | John Wood, MD |
| 1:05 p.m. – 2:35 p.m. | Track 2 | |
| 1:05 p.m. – 1:35 p.m. | Osteoporosis and Thalassemia | Patricia Giardina, MD |
| 1:35 p.m. – 2:05 p.m. | Pain and Thalassemia | TBA |
| 2:05 p.m. – 2:35 p.m. | Nutrition and Thalassemia | Ellen B. Fung, PhD, RD |
| 1:05 p.m. – 2:35 p.m. | Track 3 | |
| 1:05 p.m. – 1:35 p.m. | Insurance Options | Gargi Pahuja, MPH, JD |
| 1:35 p.m. – 2:05 p.m. | Transition of Care | Janice Beatty, RN |
| 2:05 p.m. – 2:35 p.m. | Research Studies for Thalassemia | TBA |
| 1:05 p.m. – 2:35 p.m. | Track 4 | |
| 1:05 p.m. – 1:35 p.m. | Gene Therapy | Farid Boulad, MD |
| 1:35 p.m. – 2:05 p.m. | Stem Cell Transplant | Mark Walters, MD |
| 2:05 p.m. – 2:35 p.m. | Bone Marrow Transplant | Farid Boulad, MD |
| 2:35 p.m. – 3:00 p.m. | Coffee Break | |
| 3:05 p.m. – 3:30 p.m. | Improving Adherence | TBA |
| 3:30 p.m. – 3:50 p.m. | Enhancing Advocacy Skills | Gina Cioffi, Esq. |
| 3:55 p.m. – 5:00 p.m. | Psychosocial – Patients/Adolescents/Siblings, Friends, S.O.’s/Parents/Doctors | |
| 7:30 p. m. | Dinner and Closing Remarks Location: Festival Arena, Disneyland Park | |
Special honorees this year will be Dr. Farid Boulad and Huythong Nguyen.
A registration form, journal ad form and a printed copy of the agenda can be obtained by clicking here. If you have questions, please contact Laurice Levine at lauricetag@aol.com.
If you would like information on being sponsored for the Conference, please download the information sheet by clicking here. If you are interested in donating money to sponsor a patient, contact Laurice Levine at lauricetag@aol.com.