Rare Disease Coalition Invites You to Show Support in NYC on September 8

September 1, 2010 – The Global Genes collaborative initiative invites rare disease supporters to help promote rare disease awareness on the morning of Wednesday, September 8 in New York City.


Supporters will meet at 7:30 a.m. at 59th Street and 5th Avenue near the big glass Apple store, then proceed across the street to the building in which the CBS Early Show is filmed. The goal is to get picked up by cameras that focus on the crowd outside; to that end, supporters should bring signs and placards to promote their organization and cause (such as CAF and thalassemia). The organizers will be distributing “Hope” t-shirts as well.


For more information, contact Julia at (415) 254-5758 or jjenkins@kakkis.org.

Blood Donation Facts

  • Every two seconds someone in the U.S. needs blood.
  • The number one reason donors say they give blood is because they “want to help others.”
  • One donation can help save the lives of up to three people.
  • Donating blood is a safe process. A sterile needle is used only once for each donor and then discarded.

Give Blood Today. Contact one of the organizations below to find a blood drive in your area.

American Red Crosswww.givelife.org, 1-800-GIVELIFE

America’s Blood Centers – www.americasblood.org, 1-888-USBLOOD

American Association of Blood Banks –www.aabb.org

New York Blood Center – www.nybloodcenter.org, 1-800-933-2566



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