Parent/Caregiver Input Wanted
November 16, 2009 – If you’re the parent of a child with thalassemia, or if you play a role in caring for a child with thalassemia, CAF wants to know what you want to know.
CAF is in the process of putting together a newsletter for parents of children with thalassemia, and we need your feedback.
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It’s simple, really: What do YOU want to know? What questions do you have? What kind of information would be helpful to you as you, your child and your family meet the challenges associated with thalassemia?
Please forward any questions/topic suggestions to Craig Butler at c.butler@cooleysanemia.org. We’ll try to answer/address as many as we can in the newsletter. And those that we can’t answer in this newsletter, we’ll put on file so that we can try to answer them at a later date.
Thank you.