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Blood Donations

Maintaining a safe and adequate blood supply is of great importance to the general public. Because those with a severe form of thalassemia require blood transfusions as often as every two weeks, the blood supply is of special importance to the thalassemia community.  Below are links to information and blood donations and to resources that […]

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One Clinical Trial Experience

Alicia Somma, who has thalassemia, participated in a clinical trial at Memorial Sloan-Kettering (#NCT00658385, “Assess the Feasibility and Safety of GCSF Mobilization of CD34+ Hematopoietic Progenitor Cells in Patients With Betathalassemia Major,” which is examining whether the use of GCSF will increase the number of stem cells produced; this is important in preparing for future […]

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About Informed Consent

The following information on informed consent is taken from the ClinicalTrials.gov web page on “Understanding Clinical Trials.” Click here to view the entire page. What is informed consent? Informed consent is the process of learning the key facts about a clinical trial before deciding whether or not to participate. It is also a continuing process throughout the […]

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Thalassemia Clinical Trials

Clinical Trials of Thalassemia Which Are Currently Recruiting U.S. Patients (Last Updated: January 07, 2015) The clinical studies listed here are currently enrolling new thalassemia patients in the United States. The links below provide information from the clinicaltrials.gov website about the requirements for participating in these studies (“Eligibility”). They also provide information about where the […]

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School Toolkit for People with Transfusion-Dependent Thalassemia

Click here to download a pdf copy of the “School Toolkit for People with Transfusion-Dependent Thalassemia.” Please note: CAF is in the process of developing a continuing Transfusion Help Sheet based on the model presented in the Toolkit.  We will post this Help Sheet for download on this page; our estimated date for posting is […]

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What is?

Okay, you’ve located another of our Easter eggs.  Good for you! Here’s what we have for you:   Can you identify what is shown in the portion of picture below? Send your guesses to me and I’ll let you know if you’re right.  c.butler@cooleysanemia.org

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Pop

Another Easter egg.  Good job in finding me! No links on this one: just a trivia question. What was the name of the comic strip in which Popeye the Sailor first appeared? Email me your answer – c.butler@cooleysanemia.org. Good luck!

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Puzzle It out with CAF

Yep, here’s another little Easter egg.   Take a break and play a special online CAF jigsaw puzzle.  Click here to play. If you want, email me at c.butler@cooleysanemia.org and let me know you found this! Have fun.

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Shhhh!

Good.  You found me. Glad you did. What am I?  I’m kind of like an Easter egg.  You know, those little “extras” that are sometimes hidden on a DVD and that don’t pop up on the menu. There are a few of us hidden on this site.  We’re just here for fun. Speaking of Easter […]

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