May 4, 2017 – The Cooley’s Anemia Foundation is accepting applications for its 2016-2017 Patient Incentive Awards. These awards are open to U.S. thalassemia patients who are currently pursuing education in a graduate, undergraduate, associate, certificate or vocational level. The purpose of these Awards is to inspire patients to further their education and career goals and […]
April 19, 2017 – CAF Board member Maria Hadjidemetriou has been in touch with the Libra Group, a prestigious international business group, about their exciting internship program. Thalassemia patients who are currently enrolled in an undergraduate degree program and who are interested in an internship may wish to look into this program. Full details about […]
March 27, 2017 – Registration is now open for CAF’s 2017 Patient-Family Conference! This year’s Conference will be held from July 7-9 at the College Park Marriott Hotel and Conference in Hyattsville, MD. The 2017 Patient-Family Conference is a unique opportunity for U.S. individuals with thalassemia and their family members (parents, siblings, spouses, etc.) to meet other […]
March 2, 2017- CAF is happy to provide information about camps for children with serious medical conditions including thalassemia. This is provided for informational purposes so that parents/patients can know about possible options they may wish to consider. CAF does not endorse one camp over another. The Painted Turtle The Painted Turtle is a camp […]
January 30, 2017 – The Cooley’s Anemia Foundation is announcing a change in the Chairmanship of its Medical Advisory Board (MAB). Ellis Neufeld, MD, PhD, who has been Chair of the MAB since 2009, is stepping down as of March 1. Janet Kwiatkowski, MD, MSCE will be assuming the Chairmanship of this important Board. Dr. […]
January 3, 2017 – The Thalassemia Nurses and Social Workers Committee is conducting a survey of families with an adopted child with thalassemia. If your family includes a child or children with thalassemia who are adopted, we hope you will participate in this survey to help the Committee obtain some basic information. You can click […]
August 29, 2016 – This year’s Patient-Family Conference was a notable success, with much valuable information presented over the course of the two days. CAF is pleased to make available in pdf form some of the information presented at the Conference. In order to download the pdfs, click on the title of each presentation (below). Nutrition for […]
July 28, 2016 – The recent death of an adult with thalassemia, apparently from sepsis (overwhelming bacterial infection) has led to some vigorous discussions in the thalassemia community. The discussions reveal some of the clear advantages, but also disadvantages, of social media. An advantage is that word about important events spreads rapidly. Unfortunately, news spreads […]
July 28, 2016 – CAF recently learned of a thalassemia patient with a kidney problem called Renal Fanconi Syndrome, likely due to deferasirox. We would like to answer several questions that often arise about this problem. Dr. Ellis Neufeld, Chair of CAF’s Medical Advisory Board, has provided answers to the following questions. What is Renal Fanconi Syndrome? […]
July 10, 2016 – The Cooley’s Anemia Foundation is accepting applications from individuals with thalassemia for the 2016 CAF ApoPharma Distinguished Scholar Award. The CAF-ApoPharma Distinguished Scholar Award, which was established in 2014, is made possible through a grant from pharmaceutical manufacturer ApoPharma. CAF will award up to two scholarships to a U.S. citizen(s) with […]
