January 22, 2013 – The Thalassaemia International Federation (TIF) has scheduled two concurrent international conferences for October 20-23, 2013 in Abu Dhabi in the United Arab Emirates. Information about the 13th International Conference on Thalassemia and Hemoglobinopathies and the 15th International Conference for Parents and Patients can be found here. The website for the Conferences states that […]
January 18, 2013 – Alicia Somma, an individual with thalassemia, has written an article on “5 Ways to Detox Without Food” which is currently on the MindBodyGreen website. You can read the article here. The advice in the article is general (as opposed to thalassemia-specific), but many people with thalassemia may find it useful. Congratulations […]
January 10, 2013 – CAF has learned that the first U.S.-based clinical trial in gene therapy for beta-thalassemia has begun treating trial participants. The Phase 1 study, the official title of which is “ß-Thalassemia Major With Autologous CD34+ Hematopoietic Progenitor Cells Transduced With TNS9.3.55 a Lentiviral Vector Encoding the Normal Human ß-Globin Gene,” is […]
Improving Bone Health in Patients with Thalassemia Participants at CAF’s 2012 Patient~Family Conference were treated to a broad range of important information on numerous topics. CAF is pleased to share the information from selected presentations through videos which combine the speaker’s audio presentation and accompanying slides. We will post them as they become available. Below, […]
Recommendations for Dietary Intake: Focus on Micronutrients Participants at CAF’s 2012 Patient~Family Conference were treated to a broad range of important information on numerous topics. CAF is pleased to share the information from selected presentations through videos which combine the speaker’s audio presentation and accompanying slides. We will post them as they become available. […]
October 19, 2012 – When Heather and Aaron Ayris decided to welcome a nine-year old boy with thalassemia into their home for six weeks, they hoped their hospitality would help improve his health. They wanted to show their guest a good time and lift his spirit. But it’s the Ayris family whose lives were changed […]
December 11, 2012 – Alyssa Altieri says, that without a doubt, her mom, Sandy is her best friend. Since Alyssa was diagnosed with thalassemia at just five months old, Sandy has been there for her every day. “She has taken care of me every step of the way,” 25-year-old Alyssa explained. “She has handled all […]
November 21, 2012 – CAF is pleased to share the information from selected presentations from the 2012 CAF Patient~Family Conference. We are posting here the presentation on “Management of the Non-Transfused Patient.” More videos will be posted as they become available. Keep an eye out for information on the 2013 Patient~Family Conference. We will post […]
November 19, 2012 – CAF is pleased to share the information from selected presentations from the 2012 CAF Patient~Family Conference. We are posting here the presentation on “Improving Bone Health in Patients with Thalassemia.” More videos will be posted as they become available. Check back at this website for information on the 2013 Patient~Family […]
November 13, 2012 – CAF is pleased to share the information from selected presentations from the 2012 CAF Patient~Family Conference. Because we have recently received questions concerning nutrition, we are posting here the presentation on “Recommendations for Dietary Intake: Focus on Micronutrients.” More videos will be posted as they become available. Check back at this […]
