January 26, 2009 – According to a recent news article, there may be more than 70,000 people with thalassemia in Pakistan. An article published today in the “International News” quotes Al-Mustafa Thalassemia Unit Project Director Munaf Aliana as estimating the country’s thalassemia population at more than 70,000, with 6,000 children with thalassemia born annually.
January 26, 2009
January 20, 2009 – The Children’s Hospital & Research Center Oakland has published its new Standards of Care Guidelines for Thalassemia. The guidelines, which have been authored by a team of knowledgeable thalassemia care experts lead by Elliott Vichinsky, MD, and Laurice Levine, MA, CCLS, provide valuable information about the proper care of individuals with […]
Next episode to be posted: February 2, 2009 What Is Hemoglobin H Disease? People with hemoglobin H disease, a form of alpha thalassemia, make less than the usual amount of alpha globin. This can cause anemia, which can vary from mild to severe. Many people with hemoglobin H disease do not have serious health problems […]
January 16, 2009 – According to a story in the January 8 edition of Sri Lanka’s Daily News, the government’s Healthcare and Nutrition Ministry spends 5% of its annual budget on individuals with thalassemia. The article states that Sri Lanka has approximately 2,000 thalassemia patients and that almost 100 children are born with thalassemia […]
January 15, 2009 – The Thalassemia Clinical Research Network (TCRN) presented a poster on Hemoglobin H-Constant Spring , a form of alpha-thalassemia, at the annual meeting of the American Society of Hematology (ASH) in December. The poster, entitled “Hemoglobin H-Constant Spring in North America: A Common Alpha Thalassemia with Frequent Complications,” reported on a […]
January 12, 2009 – Memorial-Sloan Kettering Cancer Center will present a forum, “Treating Thalassemia: From Transfusion to Engineered Stem Cells,” on February 5, 2009, from 2:00-5:30 p.m. This symposium is intended for physicians, researchers, patients and patient advocates. The forum will be divided into two sections. The first half, from 2:00-3:30, will focus on”Current Therapies for […]
January 9, 2009 – Start working on those dance moves – the 21st Annual “Let Your Heart Dance” is coming February 14. The Staten Island and New Jersey chapters will once again hold the “Let Your Heart Dance” at the beautiful Hilton Garden Inn in Staten Island. A knock-out cocktail reception kicks things off at 7:30, […]
January 8, 2009 – Nowadays, it seems it’s always rush, rush, rush – so as long as you’re running, why not do like some CAF supporters in Arizona and use all that running to fight thalassemia? Thirteen wonderful young people, including kindergarteners on one end of the age scale and a college student on the […]
January 4, 2009 Written by Craig Butler. Art by John Thornton. Copyright 2009 by Cooley’s Anemia Foundation Next episode to be posted: January 19, 2009 For episode 3, click here. For episode 2, click here. For episode 1, click here. Funding for Thal Pals comes from an unrestricted educational grant from Novartis Pharmaceuticals.
