August 5, 2009 – Many patients with thalassemia develop bone mass issues, usually referred to as osteoporosis or osteopenia. One of this year’s CAF-funded medical research grants is looking at a special therapy to help address this problem. This is the first in a series of articles which will provide detailed information about the […]
August 4, 2009 – The 19th International Conference on Chelation (ICOC) will be held in London from November 13 to November 16, 2009. The early registration deadline is September 11, and the deadline for abstract submissions is September 18. A list of symposia and sessions of the 19th ICOC includes: Recent Advances in Thalassaemia Complete Treatment and Optimum […]
August 3, 2009 – The TAG Conference is coming! Next episode will be posted on 08/17/09. Funding for Thal Pals comes from an unrestricted educational grant from Novartis Pharmaceuticals. Story – Craig Butler. Art- John Thornton. Copyright 2009 by Cooley’s Anemia Foundation. Want to learn more about the 2009 TAG Patient/Family Conference […]
July 23, 2009 – The Massachusetts chapter of CAF will hold its annual Dinner Dance & Silent Auction at the Hellenic Cultural Center in Watertown, MA on September 26. This wondefrul always-anticipated event will start at 6:30 and run until 11:30. The Hellenic Cultural Center is located at 25 Bigelow Avenue in Watertown, MA. For […]
July 23, 2009 – If you’re anywhere near New London, CT on August 15, plan to spend a wonderful day celebrtaing all things Italian – and helping CAF in the process. Starting at 2:00, Confederazione Italiana/Giovane Sicilia will present “Ferragosto Italiano” (Italian Mid-August Celebration) at Ocean Beach Park in New London, CT. This promises to […]
July 22, 2009 – So MUCH to do…! Next episode will be posted on 08/03/09. Funding for Thal Pals comes from an unrestricted educational grant from Novartis Pharmaceuticals. Story – Craig Butler. Art- John Thornton. Copyright 2009 by Cooley’s Anemia Foundation. Ever feel a little overwhelmed? CAF’s Social Worker, Kathleen Durst, […]
July 20, 2009 – Did you know that only 6% of people suffering from severe chronic illness participate in clinical trials? The good news in our community is that 80% of the US thalassemia patient community realizes that clinical trials often do not have enough patients enrolled, and an impressive 87% of the patients […]
July 17, 2009 – Episode Two of CAF’s new continuing serial is here. Episode Two: We want this to be an entertaining story and would value feedback from you. What kind of situations do you want to see? What kind of characters? What works for you and what doesn’t? What do you think would be a good […]
July 15, 2009 – CAF has an audio interview with Arthur Bank, author of the new book, Turning Blood Red: The Fight for Life in Cooley’s Anemia. You can listen to the interview by clicking here. Dr. Bank’s book can be ordered at Amazon.com or from the publisher, World Scientific Books.
July 14, 2009 – The American Society of Hematology (ASH) has announced that Thomas Maniatis, Ph.D., of Harvard University, Cambridge, MA, and Yuet Wai Kan, M.D., of the University of California – San Francisco, are the inaugural recipients of the Ernest Beutler Lecture and Prize. This award, […]
