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Tuesday, September 6th, 2022
CAF is accepting applications for its 2023-2024 Patient Incentive Awards and Educational Incentive Awards for Children of Individuals with Thalassemia. The purpose of these Awards is to inspire thalassemia patients, as well as children of thalassemia patients, to further their education and career goals.
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: Front Page, News, person with thalassemia
: awards, incentive awards, patient, scholarship, school
Sunday, September 4th, 2022
Looking to support a local Care Walk team? Join or donate today!
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: Care Walk, Events, Front Page, News, Upcoming Events
: Care Walk, events
Sunday, August 21st, 2022
When Maybelline, the iconic beauty brand behind Maria’s first blush, invited her to star in their “We Speak” disability pride campaign, she seized the opportunity to become the very thing she longed to see as a child—a model proudly representing the thalassemia community.
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: Blog, Front Page, News, Patients in the News
: Board of Directors, Maria Hadjidemetriou, Maybelline, patient, patient profile, patient stories, Thalassaemia International Federation, thalassemia, TIF
Wednesday, August 17th, 2022
bluebird bio, Inc. announced the FDA has approved ZYNTEGLO®, a one-time gene therapy custom-designed to treat the underlying genetic cause of beta‑thalassemia in adult and pediatric patients who require regular red blood cell transfusions.
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: Blog, Front Page, Medical Research, News
: beta-thalassemia, bluebird bio, Clinical Trials in Thalassemia Cell and Gene Therapy, Cooley's anemia, fda, gene therapy, pharma, thalassemia, ZYNTEGLO
Friday, August 12th, 2022
The event organizers are asking guests to help raise money for two selected charities: “Cooley’s Anemia Foundation” which funds medical research and education to benefit individuals living with the genetic blood disorder, thalassemia, and “A Chance in Life -The Village of Staten Island Program,” a US-based program in New York City for forgotten youth dedicated to providing shelter, education, and leadership development for at-risk youth.
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: Donors, Events, Front Page, News
: announcement, donors, news, press release, Royal Savoy Ball
Thursday, August 4th, 2022
This week’s spotlight is all about Team Ficarra. Talk about longevity – the Ficarra family is one of the founders of the Cooley’s Anemia Foundation!
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: Care Walk, Events, Front Page
: Bob Ficarra, Care Walk Spotlight, Cooley's anemia, Marianne Ficarra, spotlight, Why I Care Walk
Monday, August 1st, 2022
The Spotlight is on Maria Saradpon’s Team CAF California, who shares her top tips to fundraising success.
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: Care Walk, Events, Front Page, Upcoming Events
: Care Walk, Care Walk Spotlight, spotlight, Team CAF California
Wednesday, June 22nd, 2022
The StL Thal Pals walk in, you guessed it, St Louis, Missouri! Erica Stick is the Care Walk Captain and this is how she put her walk together. “I was lucky enough to get to know so many amazing people in the thalassemia community in my previous job,” says Erica. “Working with them daily really […]
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: Care Walk, Events, Front Page
: Care Walk, Care Walk Spotlight, Erica Stick, spotlight, StL Thal Pals
Tuesday, June 14th, 2022
Meet Yasmeen Anis. Yasmeen Care Walks because she has thalassemia and she wants to fundraise toward a cure! Her team has been Care Walking in Spring Hill, Florida since 2018. Yasmeen first got involved with Care Walk by joining a friend’s team and participating virtually from another state. She then decided to start her own […]
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: Care Walk, Events, Front Page
: Care Walk Spotlight, spotlight, Team Yasmeen, Yasmeen Anis
Thursday, April 28th, 2022
The conference is July 15-17 in Rosemont, IL. Register now at: https://cvent.me/VDkN98
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: Events, Front Page, News, Patient-Family Conference, person with thalassemia, Upcoming Events
: conference, registration