November 5, 2014 – The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia. The awards are in 3 categories: Support for Ongoing Clinical Research in Thalassemia; Clinical Trials in Thalassemia Cell and Gene Therapy; and Research Fellowships. Details are as follows: SUPPORT FOR ONGOING CLINICAL RESEARCH […]
August 25, 2014 – New explorations in gene editing. Connections between thyroid hormones and hemoglobin. Efficiency and safety in gene therapy. Using a protein to control iron. These are the ideas behind the four exciting new studies being funded by the Cooley’s Anemia Foundation this year. These new fellowships join four renewed fellowships and a […]
August 20, 2014 – Below are links to the slides that were used in many of the presentations from this summer’s Patient~Family Conference. Please click through to view the slides. Presentations are listed alphabetically. The CHOP-HUP Transition Program – The Philadelphia Experience Fertility in Thalassemia Gene Therapy and Other Curative Approaches Genome Editing for Thalassemia The […]
July 30, 2014 – TIF (Thalassaemia International Federation) has scheduled its 4th Pan-European Conference on Haemoglobinopathies and Rare Anaemias for November 7-9 in Athens, Greece. The Conference is held in collaboration with the Greek Thalassaemia Federation. Writing about the event on the Conference’s website (www.tif2014.org), TIF President Panos Englezos and Greek Thalassaemia Federation President Dr. […]
July 28, 2014 – The outlook for individuals living with thalassemia is better than it ever has been thanks to more choices for effective chelation. However, this brings with it medical concerns that patients previously did not face. One example of this is hepatitis C infection and the risks associated with it: liver cirrhosis (scarring) […]
May 6, 2014 – Your thalassemia nurse or physician is always reminding you how important it is to take the prescribed iron chelation medication every day, but there are other aspects of your health and wellbeing that are equally important to take care of if you or a loved one has thalassemia. This Q&A session with […]
February 27, 2014 – Registration is now open for CAF’s 2014 Patient~Family Conference! This amazing annual event will be held June 20-22 at the Intercontinental Chicago-O’Hare Hotel in Rosemont, Il. Entitled “Perspectives & Strategies for Thalassemia Care & Curative Options,” the Conference is a unique opportunity for any individual with thalssemia and their family members […]
February 13, 2014 -The Cooley’s Anemia Foundation often gets questions and comments concerning strategies for remaining adherent to thalassemia treatments. We have asked Dr. Richard Ward of Toronto General Hospital to respond to some of these questions. CAF thanks Dr. Ward for taking the time to share his knowledge and experience with us and with […]
The following is a notice that, RFA-DD-14-003, “Pilot Interventions to Promote the Health of People with Blood Disorders,” has been published with the correct dates on Grants.gov, December 23, 2013. → Deadline date is: March 06, 2014. To Access the Announcement & Application Package: 1. Go to: www.grants.gov 2. Select: “Applicants” from the top menu 3. Select: “Apply for Grants” 4. Select: […]
bluebird bio, a Cambridge, MA- based biotechnology company, is sponsoring the Northstar Study, investigating gene transfer as a curative option for beta-thalassemia. More information about the study, including eligibility requirements, can be found at http:///www.northstarstudy.com. The Northstar Study is now enrolling adults who are transfusion dependent and diagnosed with a beta thalassemia major. The goal […]
