July 30, 2014 – TIF (Thalassaemia International Federation) has scheduled its 4th Pan-European Conference on Haemoglobinopathies and Rare Anaemias for November 7-9 in Athens, Greece. The Conference is held in collaboration with the Greek Thalassaemia Federation. Writing about the event on the Conference’s website (www.tif2014.org), TIF President Panos Englezos and Greek Thalassaemia Federation President Dr. […]
July 28, 2014 – The outlook for individuals living with thalassemia is better than it ever has been thanks to more choices for effective chelation. However, this brings with it medical concerns that patients previously did not face. One example of this is hepatitis C infection and the risks associated with it: liver cirrhosis (scarring) […]
May 6, 2014 – Your thalassemia nurse or physician is always reminding you how important it is to take the prescribed iron chelation medication every day, but there are other aspects of your health and wellbeing that are equally important to take care of if you or a loved one has thalassemia. This Q&A session with […]
February 27, 2014 – Registration is now open for CAF’s 2014 Patient~Family Conference! This amazing annual event will be held June 20-22 at the Intercontinental Chicago-O’Hare Hotel in Rosemont, Il. Entitled “Perspectives & Strategies for Thalassemia Care & Curative Options,” the Conference is a unique opportunity for any individual with thalssemia and their family members […]
February 13, 2014 -The Cooley’s Anemia Foundation often gets questions and comments concerning strategies for remaining adherent to thalassemia treatments. We have asked Dr. Richard Ward of Toronto General Hospital to respond to some of these questions. CAF thanks Dr. Ward for taking the time to share his knowledge and experience with us and with […]
The following is a notice that, RFA-DD-14-003, “Pilot Interventions to Promote the Health of People with Blood Disorders,” has been published with the correct dates on Grants.gov, December 23, 2013. → Deadline date is: March 06, 2014. To Access the Announcement & Application Package: 1. Go to: www.grants.gov 2. Select: “Applicants” from the top menu 3. Select: “Apply for Grants” 4. Select: […]
bluebird bio, a Cambridge, MA- based biotechnology company, is sponsoring the Northstar Study, investigating gene transfer as a curative option for beta-thalassemia. More information about the study, including eligibility requirements, can be found at http:///www.northstarstudy.com. The Northstar Study is now enrolling adults who are transfusion dependent and diagnosed with a beta thalassemia major. The goal […]
December 2, 2013 – bluebird bio, Inc. today announced that the first subject with beta-thalassemia major has been enrolled in its phase 1/2 HGB-205 study in France and has undergone infusion with bluebird bio’s LentiGlobin drug product in an autologous hematopoietic stem cell transplantation. “We believe gene therapy represents a potentially new and exciting treatment […]
October 21, 2013 – The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia. Details are as follows: SUPPORT FOR ONGOING CLINICAL RESEARCH IN THALASSEMIA The Cooley’s Anemia Foundation invites national and international applications for 2014-2015 grants to support ongoing clinical research projects in Thalassemia. The goal […]
September 27, 2013 – CAF is pleased to make available to the thalassemia community an important new publication, A Guide to Living with Thalassemia, which can be downloaded by clicking here. (Please note that this document is 115 pages and may take some time to download.) A Guide to Living with Thalassemia is designed to provide […]
