Patient-Family Conference

PowerPoint: The CHOP-HUP Transition Program – The Philadelphia Experience

July 17, 2014 – The Cooley’s Anemia Foundation is pleased to provide the following PowerPoint slides which accompanied the presentation on “The CHOP-HUP Transition Program – The Philadelphia Experience” at the 2014 CAF Patient~Family Conference. Vanessa Nixon, RN, CPN of Children’s Hospital of Philadelphia and Linda Slaven, RN, BSN of The Hospital of the University of Pennsylvania, […]

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PowerPoint: Interim Results from Two Phase 2 Clinical Trials in Adults with Beta-Thalassemia

July 15, 2014 – The Cooley’s Anemia Foundation is pleased to provide the following PowerPoint slides which accompanied the presentation on “Interim Results from Two Phase 2 Clinical Trials in Adults with Beta-Thalassemia” at the 2014 CAF Patient~Family Conference. Ellis J. Neufeld, MD PhD, of Boston Children’s Hospital made the presentation at the Conference. The […]

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PowerPoint: Thalassemia Standards of Care

July 15, 2014 – The Cooley’s Anemia Foundation is pleased to provide the following PowerPoint slides which accompanied the presentation on “Thalassemia Standards of Care” at the 2014 CAF Patient~Family Conference. Ellis J. Neufeld, MD PhD, of Boston Children’s Hospital made the presentation at the Conference. The slideshow below can be viewed online; however, the […]

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PowerPoint: Transferring Knowledge from TTC Comprehensive Visit to Your Medical Home

July 15, 2014 – The Cooley’s Anemia Foundation is pleased to provide the following PowerPoint slides which accompanied the presentation on “Transferring Knowledge from TTC Comprehensive Visit to Your Medical Home” at the 2014 CAF Patient~Family Conference. Thomas Coates, MD, of Children’s Hospital Los Angeles, made the presentation at the Conference. The slideshow below can […]

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PowerPoint: Fertility in Thalassemia

July 15, 2014 – The Cooley’s Anemia Foundation is pleased to provide the following PowerPoint slides which accompanied the presentation on “Fertility in Thalassemia” at the 2014 CAF Patient~Family Conference. Sylvia Titi Singer, MD, of UCSF Benioff Children’s Hospital Oakland made the presentation at the Conference. The slideshow below can be viewed online; however, the […]

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PowerPoint: Non-Transfusion-Dependent Thalassemia

July 15, 2014 – The Cooley’s Anemia Foundation is pleased to provide the following PowerPoint slides which accompanied the presentation on “Non-Transfusion-Dependent Thalassemia” at the 2014 CAF Patient~Family Conference. Ashutosh Lal, MD, of UCSF Benioff Children’s Hospital Oakland, made the presentation at the Conference. The slideshow below can be viewed online; however, the conversion process […]

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PowerPoint: Genome Editing for Thalassemia

July 15, 2014 – The Cooley’s Anemia Foundation is pleased to provide the following PowerPoint slides which accompanied the presentation on “Genome Editing for Thalassemia” at the 2014 CAF Patient~Family Conference. Daniel E. Bauer, MD PhD, of Boston Children’s Hospital made the presentation at the Conference. The slideshow below can be viewed online; however, the conversion […]

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PowerPoint: The Importance of Zinc for Patients with Thalassemia

July 14, 2014 – The Cooley’s Anemia Foundation is pleased to provide the following Powerpoint presentation which accompanied the presentation on “The Importance of Zinc for Patients with Thalassemia” at the 2014 CAF Patient~Family Conference. Ellen B Fung, PhD RD, of UCSF Benioff Children’s Hospital Oakland made the presentation at the Conference. The slideshow below […]

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Register Now for 2014 CAF Patient-Family Conference!

February 27, 2014 – Registration is now open for CAF’s 2014 Patient~Family Conference! This amazing annual event will be held June 20-22 at the Intercontinental Chicago-O’Hare Hotel in Rosemont, Il. Entitled “Perspectives & Strategies for Thalassemia Care & Curative Options,” the Conference is a unique opportunity for any individual with thalssemia and their family members […]

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Patient Perspective: “A Sense of Community” from Patient~Family Conference

May 14, 2013 – This year’s CAF Patient~Family Conference is June 28-30 in Philadelphia. (Click here for details.) What’s the Conference like? We asked Trinayani Christiansen, who attended last year’s Conference, a few questions about her experience. CAF: How many Patient-Family Conferences have you attended? Trinayani: Last summer (2012) was my first Conference. I was […]

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