March 7, 2016 – Registration is now open for CAF’s 2016 Patient-Family Conference! For 2016, this always-anticipated annual event will be held July 8-10 at the Hilton San Diego Mission Valley in San Diego, CA. Entitled “Reaching New Heights,” the 2016 Conference is a unique opportunity for U.S. individuals with thalassemia and their family members (parents, […]
November 24, 2015
July 22, 2015 – This year’s Patient-Family Conference was a notable success, with much valuable information presented over the course of the two days. CAF is pleased to make available in pdf form some of the information presented at the Conference. In order to access the pdfs, click on the title of each presentation (below). […]
July 13, 2015 – This year’s CAF Patient-Family Conference was a great success. One of the most wonderful things about these Conferences is the opportunity for so many members of the thalassemia community to get together and exchange experiences, talk and just have fun. Below are a few pictures (photos by Thatcher Hullerman Cook) […]
June 18, 2015 – The Cooley’s Anemia Foundation wishes to acknowledge those companies which have provided funding support for this year’s Patient-Family Conference June 26-28. Those companies are ApoPharma, bluebird bio, Novartis and Sangamo. This funding is crucial in enabling CAF to present this Conference, which shares so much valuable information with our patients and […]
April 21, 2015 – The agenda for CAF’s 2015 Patient-Family Conference is available and can be downloaded by clicking here. For 2015, this always-anticipated annual event will be held June 26-28 at the Wyndham Hamilton Park Hotel and Conference Center in Florham Park, NJ. Entitled “Celebrating Self-Empowerment,” the 2015 Conference is a unique opportunity for […]
March 27, 2015 – Registration is now open for CAF’s 2015 Patient~Family Conference! For 2015, this always-anticipated annual event will be held June 26-28 at the Wyndham Hamilton Park Hotel and Conference Center in Florham Park, NJ. Entitled “Celebrating Self-Empowerment,” the 2015 Conference is a unique opportunity for U.S. individuals with thalassemia and their family […]
July 31, 2014 – The Cooley’s Anemia Foundation is pleased to provide the following PowerPoint slides which accompanied the presentation on “The Step Up Transition Program” at the 2014 CAF Patient~Family Conference. Janis R. Beatty and Diane Calamaras of Ann & Robert Lurie Children’s Hospital of Chicago made the presentation at the Conference. The slideshow […]
July 30, 2014 – The Cooley’s Anemia Foundation is pleased to provide the following pdf of the PowerPoint slides which accompanied the presentation on “Gene Therapy and Other Curative Approaches” at the 2014 CAF Patient~Family Conference. Alexis Thompson, MD, of Ann & Robert H. Lurie Children’s Hospital of Chicago, made the presentation at the Conference. You […]
July 23, 2014 – The Cooley’s Anemia Foundation is pleased to provide the following PowerPoint slides which accompanied the presentation on “Pain and Pain Management in Thalassemia” at the 2013 CAF Patient~Family Conference. Dru Haines, PNP of The Children’s Hospital Research Center, Oakland, made the presentation at the Conference. The slideshow below can be viewed […]
