Patient-Family Conference



Thank You to the Supporters of the 2015 Patient-Family Conference

June 18, 2015 – The Cooley’s Anemia Foundation wishes to acknowledge those companies which have provided funding support for this year’s Patient-Family Conference June 26-28. Those companies are ApoPharma, bluebird bio, Novartis and Sangamo. This funding is crucial in enabling CAF to present this Conference, which shares so much valuable information with our patients and […]

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Agenda for Patient Conference is Available

April 21, 2015 – The agenda for CAF’s 2015 Patient-Family Conference is available and can be downloaded by clicking here. For 2015, this always-anticipated annual event will be held June 26-28 at the Wyndham Hamilton Park Hotel and Conference Center in Florham Park, NJ.  Entitled “Celebrating Self-Empowerment,” the 2015 Conference is a unique opportunity for […]

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2015 Patient-Family Conference Celebrates Self-Empowerment

March 27, 2015 – Registration is now open for CAF’s 2015 Patient~Family Conference!  For 2015, this always-anticipated annual event will be held June 26-28 at the Wyndham Hamilton Park Hotel and Conference Center in Florham Park, NJ.  Entitled “Celebrating Self-Empowerment,” the 2015 Conference is a unique opportunity for U.S. individuals with thalassemia and their family […]

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PowerPoint: The Step Up Transition Program

July 31, 2014 – The Cooley’s Anemia Foundation is pleased to provide the following PowerPoint slides which accompanied the presentation on “The Step Up Transition Program” at the 2014 CAF Patient~Family Conference.  Janis R. Beatty and Diane Calamaras of Ann & Robert Lurie Children’s Hospital of Chicago made the presentation at the Conference. The slideshow […]

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PowerPoint: Gene Therapy and Other Curative Approaches

July 30, 2014 – The Cooley’s Anemia Foundation is pleased to provide the following pdf of the PowerPoint slides which accompanied the presentation on “Gene Therapy and Other Curative Approaches” at the 2014 CAF Patient~Family Conference.  Alexis Thompson, MD, of Ann & Robert H. Lurie Children’s Hospital of Chicago, made the presentation at the Conference. You […]

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PowerPoint: Pain and Pain Management in Thalassemia

July 23, 2014 – The Cooley’s Anemia Foundation is pleased to provide the following PowerPoint slides which accompanied the presentation on “Pain and Pain Management in Thalassemia” at the 2013 CAF Patient~Family Conference.  Dru Haines, PNP of The Children’s Hospital Research Center, Oakland, made the presentation at the Conference. The slideshow below can be viewed […]

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PowerPoint: The CHOP-HUP Transition Program – The Philadelphia Experience

July 17, 2014 –  The Cooley’s Anemia Foundation is pleased to provide the following PowerPoint slides which accompanied the presentation on “The CHOP-HUP Transition Program – The Philadelphia Experience” at the 2014 CAF Patient~Family Conference.  Vanessa Nixon, RN, CPN of Children’s Hospital of Philadelphia and Linda Slaven, RN, BSN of The Hospital of the University of Pennsylvania, […]

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PowerPoint: Interim Results from Two Phase 2 Clinical Trials in Adults with Beta-Thalassemia

July 15, 2014 –  The Cooley’s Anemia Foundation is pleased to provide the following PowerPoint slides which accompanied the presentation on “Interim Results from Two Phase 2 Clinical Trials in Adults with Beta-Thalassemia” at the 2014 CAF Patient~Family Conference.  Ellis J. Neufeld, MD PhD, of Boston Children’s Hospital made the presentation at the Conference. The […]

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