Welcome to the Cooley’s Anemia Foundation blog!

This blog will be a place for the Cooley’s Anemia Foundation to share information from and thoughts of invited members of the thalassemia community. 

Philly’s the Place to Be June 28-30

April 22, 2013 – The 2013 Patient~Family Conference is coming (June 28-30) in Philadelphia.  This is an incredible opportunity for thalassemia patients and family members to get together, hear a lot of important medical information, ask questions and have the chance to socialize.  You really don’t want to miss it! We thought you might like […]

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Opportunity to Serve as a Peer Health Coach for Thalassemia

April 10, 2013 – The Cooley’s Anemia Foundation (CAF) has been a part of a steering committee with Centric Health Resources, the Patient Centered Health Management® organization that dispenses Ferriprox, to help develop education materials and opportunities to increase treatment compliance.  One of the exciting new opportunities that Centric has asked CAF to continue to help them […]

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Video Walking

March 20, 2013 – If you’re a regular visitor to this site or to the CAF Facebook page,  then you already know that Care Walk 2013 is happening on May 5. (Don’t know what Care Walk is?  It’s our awesome annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the […]

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Gene Therapy and Other Advances Happen Because of You

February 25, 2013 – The fact that the first U.S.-based gene therapy trial for thalassemia has started (click here for details) is fantastic. Some might think it’s unbelievable we’ve progressed to this point. Actually, it’s fantastic but not unbelievable. We have reached this point because many members of the thalassemia community have dedicated years of […]

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Welcome to our new website!

The Cooley’s Anemia Foundation is pleased to launch its newly-designed website. Over the past decade, the CAF website has become one of our most valuable tools for communciating information to the thalassemia community.  We put so much information on our website that we needed a new design in order to organize it in a more […]

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