This blog will be a place for the Cooley’s Anemia Foundation to share information from and thoughts of invited members of the thalassemia community.
April 29, 2013 – As you already know (and you do know this, don’t you), May 5 is the official date for our annual Care Walk – a chance for people to show support for all those with thalassemia while raising funds to help CAF in the fight against thalassemia. But because we designed Care […]
April 22, 2013 – The 2013 Patient~Family Conference is coming (June 28-30) in Philadelphia. This is an incredible opportunity for thalassemia patients and family members to get together, hear a lot of important medical information, ask questions and have the chance to socialize. You really don’t want to miss it! We thought you might like […]
April 10, 2013 – The Cooley’s Anemia Foundation (CAF) has been a part of a steering committee with Centric Health Resources, the Patient Centered Health Management® organization that dispenses Ferriprox, to help develop education materials and opportunities to increase treatment compliance. One of the exciting new opportunities that Centric has asked CAF to continue to help them […]
One of the great things about the Cooley’s Anemia Foundation’s Care Walk is that, because of its flexibility, a Care Walk can be held just about anywhere. Where would you like YOUR Care Walk to take YOU? Maybe to some of the places below? If you haven’t already, sign up for a Care Walk today! […]
March 20, 2013 – If you’re a regular visitor to this site or to the CAF Facebook page, then you already know that Care Walk 2013 is happening on May 5. (Don’t know what Care Walk is? It’s our awesome annual fundraising event and opportunity to bring together the thalassemia community and its supporters around the […]
February 25, 2013 – The fact that the first U.S.-based gene therapy trial for thalassemia has started (click here for details) is fantastic. Some might think it’s unbelievable we’ve progressed to this point. Actually, it’s fantastic but not unbelievable. We have reached this point because many members of the thalassemia community have dedicated years of […]
The Cooley’s Anemia Foundation is pleased to launch its newly-designed website. Over the past decade, the CAF website has become one of our most valuable tools for communciating information to the thalassemia community. We put so much information on our website that we needed a new design in order to organize it in a more […]
