Cast a Vote to Help Rare Disease Program

September 13, 2010 – Gina Cioffi, CAF National Executive Director, urges you to cast a vote for the Children’s Rare Disease Network project to help them win a grant that will enable them to build a funding platform to promote research for thalassemia and other rare disorders.


Children’s Rare Disease Network (CRDN) is an advocacy organization that provides resources for families affected by rare disease, such as thalassemia. They are competing for a grant from Pepsi to help them pursue their work. You can vote your support of this project and help them win this grant by going to:


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