Call to Action: Make Voice Heard Re: Healthy People 2020

November 16, 2009 – CAF National Executive Director Gina Cioffi urges the thalassemia community to provide feedback on a specific topic area in the proposed Healthy People 2020 initiative.

Dear Thalassemia Community Members,


We need your help regarding an important “Quality of Life” issue for people with thalassemia.

The government is in the process of accepting public comments on its objectives for the “Healthy People 2020” program. The draft of the program includes a section for hemoglobinopathies, part of which looks at measuring and improving the health of thalassemia patients.

However, one important measurement – that of quality of life among people with blood disorders

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