CAF Schedules Webinars on Thalassemia

January 24, 2011 – The Cooley’s Anemia Foundation (CAF) has a series of three webinars of interest to the thalassemia community scheduled for February.

CAF’s webinars are a way of getting information from experts to patients and parents in a direct online manner.  Those interested in participating will call into a special phone number to hear a presentation while logged on to their computers to view slides and other components of the presentation.

 

TAG Patient/Family Conference

June 24 – 25, 2011

Click here for more information.

 
CareWalk  

The first webinar, scheduled for Thursday, February 3 from 7:00-8:00 p.m. (EST),  will focus on “Nutrition in Thalassemia” and will be presented by Ellen B. Fung, PhD, RD, CCD, Associate Research Scientist at Children’s Hospital & Research Center Oakland and HEDCO Health Sciences Center.  Proper nutrition is important in thalassemia, both as a child and as an adult; but due to the many factors involved in thalassemia, finding appropriate nutritional information can be challenging.

On Tuesday, February 15 from 7:00-8:00 p.m. (EST), Kevin Cremin, Director of Disability and Public Benefits at Legal Services NYC, will talk about “Disability: The Facts.”  Disability is a complex issue, so individuals with an interest in this issue are urged to attend this webinar.

“Child Development Issues in Thalassemia” will be the topic of the Wednesday, February 23 webinar (7:00-8:00 p.m., EST).  Lauren Mednick, PhD, of the Psychiatry Consulting Service, Medical Coping Team at Children’s Hospital Boston, will be the speaker.  This webinar will be of special interest to parents of children with thalassemia, as it will focus on development matters that are common in or specific to thalassemia.

CAF is excited to offer these webinars to the thalassemia community as a way of addressing questions that are of concern to many in the community.

If you are interested in participating in these webinars or wish further information,  please contact CAF Social Worker Kathleen Durst (k.durst@cooleysanemia.org or 212-279-8090).

 


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