CAF Launches Three New Patient Services Programs

July 16, 2018 – The Cooley’s Anemia Foundation is proud to announce three new programs intended to benefit members of the U.S. thalassemia community. These programs are:

Support for Significant Travel to Treatment Centers

The Cooley’s Anemia Foundation (CAF) is offering limited financial assistance to individuals with thalassemia who live 150 or more miles from a major thalassemia treatment center and who experience financial hardship due to travel expenses incurred in obtaining an annual comprehensive care evaluation or extraordinary thalassemia care at a major treatment center. (Extraordinary thalassemia care shall be defined as care recommended by a qualified thalassemia physician which falls outside regular transfusions or comprehensive care – for example, if a patient requires multiple MRI iron assessments which cannot be performed at their home treatment facility.)

CAF will reimburse up to $500 in travel expenses to qualified applicants. Reimbursements will be distributed on a first come, first serve basis until funding for the period has been exhausted. No one thalassemia patient may receive more than $500 travel reimbursement on an annual basis under the terms of this program. Families with more than one child with thalassemia may be reimbursed for up to $500 for each child. Travel must have occurred on or after July 1, 2018.

Because funds are limited, patients are encouraged to check with CAF in advance if they are planning on utilizing this program for reimbursement. CAF will make every effort to assist qualified applicants but cannot provide funding once it is exhausted for the year. Total funding for the initial year is $30,000.

Full information and an application form can be downloaded here.

Support for Parents of Newly Adopted Children with Thalassemia

The Cooley’s Anemia Foundation (CAF) will award $1,000 to parents of newly-adopted children with significant forms of thalassemia in recognition of their willingness to provide a new home to these important members of the thalassemia community. (A significant form of thalassemia would include thalassemia major, thalassemia intermedia, e beta thalassemia, hemoglobin H disease or hemoglobin H constant spring.) This will apply to children adopted on or after July 1, 2018.

Support will be dependent upon availability of funding. In the event that the number of applicants exceeds the amount of funding available, the Foundation reserves the right to make adjustments as necessary in the number of awards given and/or the level of funding for each applicant.

Full information and an application form can be downloaded here.

Educational Incentive Award Program for Children of Individuals with Thalassemia

The Cooley’s Anemia Foundation is initiating an educational incentive award program for children of U.S. individuals with severe thalassemia to further their education and career goals. These awards will be made this year in March, 2019 for students enrolled in the fall 2018 and/or spring 2019 semester(s). The total amount of funding for this program for the current 2018-2019 school year is $10,000.

It is the goal of The Cooley’s Anemia Foundation to fund all complete, eligible applications received by February 15, 2019. However, in the event that the number of applicants exceeds the amount of funding available for these Incentive Awards, the Foundation reserves the right to make adjustments as necessary in the number of awards given and/or the level of funding for each successful applicant.

The incentive awards will be given out as follows:

  • $1,000 will be awarded to students enrolled in Baccalaureate, Master or Doctorate programs. Patients may receive four undergraduate, two master and two doctorate level awards over the course of their studies.
  • $500 will be awarded to students entering or continuing full time studies towards a two-year Associate degree, one-year certificate program or 6-month certificate or vocational training program. These are limited to two per applicant over the course of his/her pursuit of a two-year Associates degree, or one per applicant for a one-year or 6-month certificate or vocational training program.

Full information and an application form can be downloaded here.

PLEASE NOTE: This Educational Incentive Award Program is for CHILDREN of U.S. individuals with thalassemia. It is separate from our ongoing Patient Incentive Awards for U.S. patients with a clinically significant form of thalassemia. The application for the Patient Incentive Awards for 2018-2019 can be downloaded here.


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