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Monet Jackson is young but she knows how to win hearts – and how to win out over thalassemia. With your support, there’s no telling what she will accomplish.
Born with thalassemia, Julia Tang has been cured through bone marrow transplantation. Not everyone can benefit from treatments like these – yet. But CAF is making sure that advances continue so that all patients will one day be cured.
The support of people like you makes these advances like these possible. Thank you!
Robert Mannino has been getting blood transfusions since he was six months old. But that hasn’t stopped him from pursuing his dream. Read about this Georgia Tech student (and thalassemia patient)’s use of research to find a better way.
Alyssa Altieri says, without a doubt, that her mom, Sandy is her best friend. Since Alyssa was diagnosed with thalassemia at just five months old, Sandy has been there for her every day.
The Cooley's Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley's anemia/thalassemia major.
Our mission is advancing the treatment and cure for this fatal blood disease, enhancing the quality of life of patients and educating the medical profession, trait carriers and the public about Cooley's anemia/thalassemia major.
Learn, connect and thrive with others in the thalassemia community at the 2023 CAF Patient-Family Conference from July 7-9 at the Hilton Los Angeles Airport. Virtual attendance is also available.
The council will bring together patients, caregivers and physicians from these communities, which share commonalities in underlying disease pathology, difficulties in transitioning from pediatric to adult care and quality of life concerns.
The Cooley’s Anemia Foundation’s Westchester-Rockland Chapter welcomes all to experience its 25th annual “Night at the Races” benefit on April 1, 2023.