Year: 2021

International Meeting for People with Thalassemia on June 26, 2021

May 24, 2021 – On June 26, ABRASTA (the thalassemia association of Brazil) is holding an online international meeting for people with thalassemia. This will be an online event to bring together thalassemia patients from different ages, in different rooms, from different countries so they can get to know people who face thalassemia in other countries […]

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CAF Shares New Video on Understanding and Managing Worry

May 24, 2021 – CAF is sharing a new video created by our social worker Kathleen Durst on Understanding and Managing Worry.  Watch the video at the following link: https://www.youtube.com/watch?v=NsRqPgs-mFA. U.S. thalassemia patients and family members should contact Kathleen at kdurst@thalassemia.org if they wish to learn more about the work that Kathleen does with members […]

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Registration Now Open for 2021 CAF Patient-Family Conference (August 13-15)

May 13, 2021 – Registration is now open for the 2021 CAF Patient-Family Conference to be held August 13-15, 2021 in New Brunswick, NJ.  This conference will be a live, in-person event; in addition, the Saturday sessions will be available online for those who cannot attend in person.  We will be following all Covid-19 safety […]

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Story on Nicholas Jannetti Featured in Italian America Magazine

April 30, 2021 – A big thank you to our incredible friends at Order Sons and Daughters of Italy in America (OSDIA) for the beautiful story in the current Italian America Magazine on Nicholas Jannetti.  Nicholas was born with thalassemia but recently underwent a curative transplantation  and the article talks about his and his family’s […]

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Save the Date: CAF Patient-Family Conference on August 13-25

April 15, 2020 – CAF is enormously pleased to announce that this year’s Patient-Family Conference will be available as both an in-person and online event this year and will be held from August 13-15. The in-person event will be held in New Brunswick, NJ. However, please note that the number of people who can attend […]

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New CAF-Acceleron Scholarships for Academic Achievements Accepting Applications from U.S. Thalassemia Community

March 31, 2021 – The Cooley’s Anemia Foundation and Acceleron Pharma Inc. are offering up to four college scholarships of $5,000 each to individuals with a clinically significant form of thalassemia (alpha or beta thalassemia major, beta thalassemia intermedia, e beta thalassemia, hemoglobin H disease or hemoglobin H disease Constant Spring).  Two of these scholarships […]

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HealthWell Foundation Launches Pulmonary Hypertension Fund

January 11, 2021 – The HealthWell Foundation is an independent non-profit that provides a financial lifeline for inadequately insured Americans. They have launched a Pulmonary Hypertension Fund to assist individuals living with pulmonary hypertension (PH). Through the fund, HealthWell will provide up to $10,000 in medication copayment or insurance premium assistance for a 12-month grant period to eligible Medicare patients […]

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