Year: 2021

CAF Volunteer National President Peter Chieco to be Honored as Finalist for IiO Lifetime Achievement Award This Thursday, September 23

September 20, 2021 – The Cooley’s Anemia Foundation is thrilled to share that Peter Chieco, CAF Volunteer National President, has been selected as one of three national finalists for the Lifetime Achievement Award as part of the 15th Annual Invest in Others (IiO) Awards.  Please join us in congratulating Mr. Chieco, and show your support […]

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Watch CAF’s Virtual Care Walk 2021 Here!

September 19, 2021 – The Cooley’s Anemia Foundation’s annual Care Walk is finally here, and we are so grateful seeing how many people across the country are Care Walking in honor of individuals with thalassemia. As you know, Care Walk is the Cooley’s Anemia Foundation’s largest annual fundraising event, bringing together the thalassemia community and […]

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Join CAF’s Virtual Care Walk on September 19

September 3, 2021 – On September 19, thousands of supporters in cities across the U.S. will be participating in our Care Walk in honor and support of all those living with the challenges of thalassemia. Care Walk is the Cooley’s Anemia Foundation’s largest annual fundraising event, bringing together the thalassemia community and its supporters around […]

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Gene Therapy Trial for ALD Halted

August 9, 2021 – bluebird bio has announced that a patient in their gene therapy trial for early cerebral adrenoleukodystrophy (ALD) has developed MDS (myelodysplastic syndrome).  In line with their protocols, bluebird has shared relevant data and sought advice about this report with the regulatory authorities, trial investigators, and the independent Data Monitoring Committee for […]

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CAF Shares Two New Videos Created by CAF Social Worker Kathleen Durst

July 29, 2021 – CAF is sharing two new videos created by our social worker Kathleen Durst.  The first video is is entitled “Managing Thoughts and Emotions,” and can be accessed here: https://www.youtube.com/watch?v=q4_CQcAxv-M. The second video is entitled “Tolerating and Sending Away Physical Pain,” and can be accessed here: https://www.youtube.com/watch?v=0_pNzyL4RAs. U.S. thalassemia patients and family […]

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CAF President Peter Chieco Selected as Finalist for Lifetime Achievement Award by Invest in Others Charitable Foundation

July 14, 2021 – Cooley’s Anemia Foundation congratulates Peter Chieco, CAF Volunteer National President, on being selected as one of three national finalists for the Lifetime Achievement Award as part of the 15th Annual Invest in Others Awards. Mr. Chieco’s decades of work on behalf of the Cooley’s Anemia Foundation has gained him this unique […]

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