Year: 2020

Update on Coronavirus

February 25, 2020 – Coronavirus Disease 2019 (COVID-19) is a respiratory illness caused by the virus SARS-CoV-2. This disease was first identified in Wuhan, China in December of 2019. As of February 25th, 2020, the virus has been found in affected individuals in over 3 dozen countries.  The virus is spread between people by small […]

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Updated Requirements for CAF’s Treatment Travel Support Program

February 21, 2020 – Cooley’s Anemia Foundation is pleased to announce that it has revised the requirements for travel reimbursement to individuals with thalassemia who experience financial hardship due to travel expenses incurred in obtaining an annual comprehensive care evaluation or extraordinary thalassemia care at a major treatment center. (Extraordinary thalassemia care shall be defined […]

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Join Care Walk 2020 Today!

CAF is thrilled to be celebrating our Tenth Annual Care Walk this year! Besides raising #thalassemia awareness and funds for medical research and patient programs, what makes this annual event so special is the thousands of community members who gather to show how much we love and care about individuals with thalassemia. Whether you are […]

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ZYNTEGLO Gene Therapy Launches in Germany for Treatment of Beta Thalassemia

January 27, 2020 – Earlier this month, bluebird bio announced the launch in Germany of ZYNTEGLO (autologous CD34+ cells encoding βA-T87Q-globin gene), the first gene therapy approved in Europe for the treatment of transfusion-dependent beta thalassemia. ZYNTEGLO is a one-time gene therapy for patients 12 and older with transfusion-dependent beta-thalassemia who do nothave a B0/B0 […]

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