TIF Seeks US Patients to Test New Programs

March 9, 2016 – The Thalassaemia International Federation (TIF) is seeking U.S. patients to help test two new projects geared toward the thalassemia community. The projects, the ThaliMe app and a Thal e-Course, are described below.

Those interested in participating or learning more should contact TIF at thalassaemia@cytanet.com.cy.

ThaliMe: TIF seeks 10 patients to pilot this Smart Phone app, intended to give people living with thalassemia, their families and caregivers a private mobile support network and a set of tools to simplify daily management and monitor overall health. According to TIF, patients selected to test the program who stay with the program for three months will receive a symbolic remuneration of about $300 US.

Thal e-Course: TIF seeks 10 patients to pilot this¬†electronic platform, the aim of which is to educate patients on thalassemia and its management. The program consists of three courses which in turn consist of 5 modules each. TIF states that “for every patient that completes this course, TIF proposes to reduce and/or completely waive registration fees to any TIF organized regional and/or international educational event.”

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