Meet Brianna: High School Senior and Care Walk Captain

Monday, March 20th, 2017

March 20, 2017- Throughout this Care Walk season, we are highlighting stories of some of the amazing people whose efforts make this event a success for the Cooley’s Anemia Foundation and all the patients we serve. With so many Care Walks taking place on the same day, we hope that these stories will invite us […]

Register Now for 2014 CAF Patient~Family Conference!

Thursday, February 27th, 2014

February 27, 2014 – Registration is now open for CAF’s 2014 Patient~Family Conference!  This amazing annual event will be held June 20-22 at the Intercontinental Chicago-O’Hare Hotel in Rosemont, Il. Entitled “Perspectives & Strategies for Thalassemia Care & Curative Options,” the Conference is a unique opportunity for any individual with thalssemia and their family members […]

Staten Island Chapter Golf Outing Hits the Links May 7

Tuesday, February 25th, 2014

February 25, 2014 – It may have been a rough winter, but the snow ought to be gone by May 7 – the date of the Staten Island chapter of CAF’s 10th annual Charity Golf Outing! This annual event has become one of the most anticipated for area golfers, whether dedicated enthusiasts or occasional links-walkers. […]

Where Will Your 2014 Care Walk Take You?

Wednesday, January 29th, 2014

January 29, 2014 – Registration is open for the Cooley’s Anemia Foundation’s 2014 Care Walk on May 4, 2014! Be a part of this important community builder and fund raiser to fight thalassemia!   Click here to learn more!  

Staten Island Blood Drive on January 26

Friday, January 10th, 2014

January 10, 2014 – Residents of Staten Island, NY: Our Lady of Pity Church and the Staten Island Chapter of Cooley’s Anemia Foundation are hosting their annual winter blood drive on Sunday, January 26, from 8:15 a.m. to 2:15 p.m.  Please make a special effort to come and donate blood if you are able! Information: […]

CAF Posts New “Guide to Living with Thalassemia” for Download

Friday, September 27th, 2013

September 27, 2013 – CAF is pleased to make available to the thalassemia community an important new publication, A Guide to Living with Thalassemia, which can be downloaded by clicking here.  (Please note that this document is 115 pages and may take some time to download.) A Guide to Living with Thalassemia is designed to provide […]

School Toolkit for Thalassemia Now Available for Download

Wednesday, August 21st, 2013

August 21, 2013 – If you or your child needs to talk with school personnel about your experience with thalassemia and how it may impact attendance or schoolwork, CAF has a new publication that can help: The School Toolkit for People with Transfusion-Dependent Thalassemia. Over the years, the Cooley’s Anemia Foundation has heard from some patients […]

CAF Funds $375,000 in Important Thalassemia Research Areas

Monday, July 15th, 2013

July 15, 2013 – What would motivate a person with thalassemia to make changes to improve adherence to therapy?  Can metabolic substances in a person with thalassemia give a clue to how iron is loading in his/her heart?  Would moving the fetal hemoglobin gene cause it to create more fetal hemoglobin? These are just some […]

Study Examines MRI-Based Iron Measurements

Thursday, July 11th, 2013

July 11, 2013 – A study recently published in the medical journal Magnetic Resonance in Medicine concludes that Spin-Density Projection-Assisted MRI measurement of liver iron concentration (LIC) is “a reliable and accurate method for estimation of LIC that is suitable for diagnosis and management of patients with iron overload.” The study, entitled “Multicenter validation of […]

Liver Complications: Help Prevent Them

Thursday, July 11th, 2013

July 11, 2013 – Liver problems are often a problem for people with thalassemia. Here are some steps that you can take to help prevent them: Learn more about liver issues in thalassemia.  Click here.