Patient Stories

Patient Profile: Alyssa – Finding a Way Together

Wednesday, December 19th, 2012

December 11, 2012 – Alyssa Altieri says, that without a doubt, her mom, Sandy is her best friend. Since Alyssa was diagnosed with thalassemia at just five months old, Sandy has been there for her every day. “She has taken care of me every step of the way,” 25-year-old Alyssa explained. “She has handled all […]

"Researching a Better Way" – Patient Profile of Robert Mannino

Tuesday, June 12th, 2012

June 12, 2012 – Robert Mannino knows more about blood transfusions than most people. Diagnosed with thalassemia when he was just six months old, he’s spent much of his life in clinics, hooked up to transfusion machines for treatment of the disorder Now 20 years old and a junior at the Georgia Institute of Technology […]

"Trying New Things Every Day" – Patient Profile of Aaron Cheng

Tuesday, April 10th, 2012

April 6, 2012 – My name is Aaron Cheng, and I’ve just completed my first semester of college at Harvard University. I don’t remember when I was diagnosed with beta thalassemia major, which is also known as Cooley’s Anemia, but my parents tell me it was when I was around one year old.  We were […]

Young Julia’s Newfound Energy

Wednesday, April 4th, 2012

Look around 10-year-old Julia Tang’s house and you’ll see dozens of her pencil drawings on the walls — a menagerie of animals, fruits and treasured objects. Listen and you’ll hear her playing spirited music on the piano in her parents’ living room. Ask young Julia about what her favorite subject at school, and she doesn’t […]

"A Family’s Energy and Strength"

Wednesday, February 22nd, 2012

February, 2012 – Rahul Kapoor is the sole member of his immediate family with thalassemia – but his entire family shoulders the struggle. They’ve rallied around him and supported one another since he was diagnosed with the blood disorder when he was four years old. Now nineteen, Rahul is a sophomore at the University of […]

"A Brighter Future, Day by Day"

Thursday, January 19th, 2012

January, 2012 – It’s always difficult being a first-time parent – but when your baby is diagnosed with a blood disorder like thalassemia, life is immediately even harder. That’s what happened when Teresa and Joe Turchi’s four-and-a-half month old daughter Gabriella was diagnosed with thalassemia at the Children’s Hospital of Philadelphia. “We were devastated and […]