person with thalassemia
Tuesday, June 27th, 2023
The Cooley’s Anemia Foundation (CAF) recognizes the importance of maintaining health among thalassemia patients and is offering reimbursement of up to $500 for approved expenses related to health maintenance among U.S. thalassemia patients who are age 50 or older.
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: Front Page, info thalassemia, News, Patients in the News, person with thalassemia
: beta-thalassemia, Cooley's anemia, cooleys anemia foundation, health maintenance, patient care, patients, reimbursement, thalassemia, thalassemia care, thalassemia major, thalassemia patients
Monday, June 26th, 2023
The Cooley’s Anemia Foundation (CAF) offers travel support to treatment centers to Thalassemia patients. We’re offering limited financial assistance to individuals with thalassemia who experience financial hardship due to travel expenses incurred in obtaining an annual comprehensive care evaluation or extraordinary thalassemia care at a major treatment center.
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: Front Page, info thalassemia, Links, News, person with thalassemia
: Cooley's anemia, financial, patient care, patients, registration, thalassemia, thalassemia patients, travel insurance
Thursday, March 9th, 2023
Learn, connect and thrive with others in the thalassemia community at the 2023 CAF Patient-Family Conference from July 7-9 at the Hilton Los Angeles Airport. Virtual attendance is also available.
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: Events, Front Page, News, Patient-Family Conference, person with thalassemia, Upcoming Events
: conference, registration
Tuesday, February 28th, 2023
The council will bring together patients, caregivers and physicians from these communities, which share commonalities in underlying disease pathology, difficulties in transitioning from pediatric to adult care and quality of life concerns.
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: Blog, Front Page, News, person with thalassemia
: Agios, beta thalassemia major, biotech, Cooley's anemia, e beta thalassemia, patient advocacy, pharma, PKD, Red Cell Revolution, SCD, Thal Pals, thalassemia
Tuesday, September 6th, 2022
CAF is accepting applications for its 2023-2024 Patient Incentive Awards and Educational Incentive Awards for Children of Individuals with Thalassemia. The purpose of these Awards is to inspire thalassemia patients, as well as children of thalassemia patients, to further their education and career goals.
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: Front Page, News, person with thalassemia
: awards, incentive awards, patient, scholarship, school
Thursday, April 28th, 2022
The conference is July 15-17 in Rosemont, IL. Register now at: https://cvent.me/VDkN98
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: Events, Front Page, News, Patient-Family Conference, person with thalassemia, Upcoming Events
: conference, registration
Thursday, May 13th, 2021
May 13, 2021 – Registration is now open for the 2021 CAF Patient-Family Conference to be held August 13-15, 2021 in New Brunswick, NJ. This conference will be a live, in-person event; in addition, the Saturday sessions will be available online for those who cannot attend in person. We will be following all Covid-19 safety […]
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: Events, News, Patient-Family Conference, person with thalassemia, Upcoming Events
: conference, registration
Thursday, April 15th, 2021
April 15, 2020 – CAF is enormously pleased to announce that this year’s Patient-Family Conference will be available as both an in-person and online event this year and will be held from August 13-15. The in-person event will be held in New Brunswick, NJ. However, please note that the number of people who can attend […]
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: Events, News, Patient-Family Conference, person with thalassemia, Upcoming Events
: conference, registration
Friday, December 11th, 2020
December 11, 2020 – CAF is pleased to share several of the presentations made at the 2020 CAF Online Mini Conference for Patients and Families, which took place virtually on Saturday, July 11. Click on the links below to watch recordings of the presentations. Overview: Novel Therapies in Thalassemia Medical Issues Related to COVID-19 for […]
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: Events, Patient-Family Conference, person with thalassemia, Upcoming Events
: presentation, registration
Wednesday, April 1st, 2020
April 1, 2020 – Due to the ongoing situation concerning COVID-19, the Cooley’s Anemia Foundation will be postponing the 2020 Patient-Family Conference in New Brunswick to July of 2021. We regret the necessity of taking this step; however, we feel that given the fluidity and unpredictability of the current situation, it is in the best […]
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: Events, News, Patient-Family Conference, person with thalassemia, Upcoming Events
: registration