person with thalassemia

Health Maintenance for Thalassemia Patients aged 50 Years and Older

Health Maintenance Award for Thalassemia Patients 50 years and older

The Cooley’s Anemia Foundation (CAF) recognizes the importance of maintaining health among thalassemia patients and is offering reimbursement of up to $500 for approved expenses related to health maintenance among U.S. thalassemia patients who are age 50 or older.

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Travel Support to Treatment Centers for Thalassemia Patients

Travel Support for Thalassemia Patients

The Cooley’s Anemia Foundation (CAF) offers travel support to treatment centers to Thalassemia patients. We’re offering limited financial assistance to individuals with thalassemia who experience financial hardship due to travel expenses incurred in obtaining an annual comprehensive care evaluation or extraordinary thalassemia care at a major treatment center.

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Agios Launches Advocacy Advisory Council for Thalassemia, PK Deficiency, SCD

The council will bring together patients, caregivers and physicians from these communities, which share commonalities in underlying disease pathology, difficulties in transitioning from pediatric to adult care and quality of life concerns.

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CAF Accepting Applications for ’23 Patient and Educational Incentive Awards

CAF is accepting applications for its 2023-2024 Patient Incentive Awards and Educational Incentive Awards for Children of Individuals with Thalassemia. The purpose of these Awards is to inspire thalassemia patients, as well as children of thalassemia patients, to further their education and career goals.

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Registration Now Open for 2021 CAF Patient-Family Conference (August 13-15)

May 13, 2021 – Registration is now open for the 2021 CAF Patient-Family Conference to be held August 13-15, 2021 in New Brunswick, NJ.  This conference will be a live, in-person event; in addition, the Saturday sessions will be available online for those who cannot attend in person.  We will be following all Covid-19 safety […]

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Save the Date: CAF Patient-Family Conference on August 13-25

April 15, 2020 – CAF is enormously pleased to announce that this year’s Patient-Family Conference will be available as both an in-person and online event this year and will be held from August 13-15. The in-person event will be held in New Brunswick, NJ. However, please note that the number of people who can attend […]

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Presentations from 2020 CAF Patient-Family Conference

December 11, 2020 – CAF is pleased to share several of the presentations made at the 2020 CAF Online Mini Conference for Patients and Families, which took place virtually on Saturday, July 11. Click on the links below to watch recordings of the presentations. Overview: Novel Therapies in Thalassemia Medical Issues Related to COVID-19 for […]

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CAF Patient-Family Conference Postponed Until July of 2021

April 1, 2020 – Due to the ongoing situation concerning COVID-19, the Cooley’s Anemia Foundation will be postponing the 2020 Patient-Family Conference in New Brunswick to July of 2021. We regret the necessity of taking this step; however, we feel that given the fluidity and unpredictability of the current situation, it is in the best […]

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