December 29, 2010 – CAF has two new publications for you. Our parent-oriented publication, You & Your Child, can be downloaded by clicking here. Our CAF Insurance Primer can be downloaded by clicking here. We also invite you to give us feedback on these publications by clicking here to comment on You & Your Child […]
December 16, 2011 – Results from THALASSA, a placebo-controlled study examining the benefit of iron chelation with Exjade® (deferasirox) in patients with non-transfusion-dependent thalassemia (NTDT), were presented on December 13 at the 53rd Annual Meeting of the American Society of Hematology in San Diego. “Patients with NTDT” could include some individuals with beta thalassemia intermedia, […]
December 14, 2011 – The American Society of Hematology (ASH) presented the 2011 Wallace H. Coulter Award for Lifetime Achievement in Hematology, the Society’s highest honor, to David G. Nathan, MD, of the Dana-Farber Cancer Institute and Children’s Hospital Boston for his remarkable career combining outstanding teaching, pioneering research, and excellence in clinical care. Beyond Dr. […]
December 15, 2011 – Every year, the world famous New York City Marathon attracts more than 45,000 runners – and this year, one of those runners was Ben Li, a man with beta thalassemia major. Ben, competing in the NYC Marathon for the first time, finishing the 26.2 miles in under 5 hours. This is […]
December 7, 2011 – The Queens chapter of CAF would like to remind you of its ongoing vehicle donation program. By donating your car, van or truck, you can help CAF fund its programs and at the same time receive the IRS tax deduction plus cash. The service also includes free pick-up and towing. For […]
December 5, 2011 – The oral chelator Ferriprox, recently approved by the U.S. Food and Drug Administration, is available to U.S. patients as of today (December 5, 2011). The drug’s manufacturer, ApoPharma, has set up a system whereby all U.S. patients who have been receiving Ferriprox under a Treatment IND program (also called “compassionate use”) […]
February 18, 2012 – The January, 2012 issue of Lifeline, the Cooley’s Anemia Foundation’s newsletter, can be downloaded as a pdf by clicking here. You can help us make Lifeline even better. Please take just a few minutes to fill out our survey about this issue by clicking here. Your feedback is very valuable […]
November 10, 2011 – The Queens chapter of CAF is holding a fundraiser at the December 10 New York Islanders hockey game against the Pittsburgh Penguins. A portion of the proceeds of tickets sold for specified seats will be donated to CAF. Details are available by downloading this flyer. For more information, contact John […]
November 1, 2011 – Mary Ann Cervoni-Iaia was recently elected the new President of the Suffolk chapter of CAF. We spoke with Mary Ann to find out how she feels and what she wants to do as President of the chapter. CAF: Tell us a little bit about yourself and your involvement with the Suffolk […]
October 25, 2011 – The Cooley’s Anemia Foundation is accepting applications for the following: SUPPORT FOR ONGOING CLINICAL RESEARCH IN THALASSEMIA The Cooley’s Anemia Foundation invites national and international applicants to apply for grants to support ongoing clinical research projects in thalassemia. The goal of this initiative is to support investigators from all disciplines and backgrounds […]
