News

Patient-Family Conference June 29-July1

February 24, 2012 – Save the Date! The Cooley’s Anemia Foundation will hold the 2012 Patient-Family Conference from June 29 – July 1at the Royal Sonesta Hotel in Cambridge, MA. The event kicks off with a welcome reception on Friday evening, June 29. Two full days of Conference sessions follow on June 30 and […]

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NIH Launches New Clinical Trials Website

February 7, 2012 -The National Institutes of Health (NIH) has created a new website, NIH Clinical Research Trials and You, to help people learn more about clinical trials, why they matter, and how to participate. From the first cure of a solid tumor with chemotherapy to the use of nitroglycerin in response to heart attacks, […]

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Care Walk 2012 is Coming on May 6

February 6, 2012 – Get out your calendars open up your eCalendars – and mark Sunday, May 6 for CAF’s Care Walk 2012! For more details, including how to set up your own Care Walk fund raising page, go to tinyurl.com/CareWalk2012 or contact Nathalia Perozo, n.perozo@cooleysanemia.org or (212) 279-8090. List of organized Care Walk locations is here. […]

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Questions on Thalassemia Syndromes: Intermedia and Hemoglobin H

February 1, 2012 – CAF Medical Advisory Board Chair Ellis Neufeld, MD, answers some of the questions which have been forwarded to CAF by individuals with thalassemia intermedia. CAF: Why don’t intermedias qualify for bone marrow transplants, even if the diagnosis changes to major? EN: Bone marrow transplantation can be a dangerous endeavor, and the […]

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NYS OSIA Dine Around Set for April 3

January 25, 2012 – The New York State Grand Lodge of OSIA (Order Sons of Italy in America) has set its 2012 Dine-Around for Cooley’s Anemia for Tuesday, April 3 – and Michele Sewitch plans to be there for sure.     “I attended my first Dine Around two years ago,” Michele says. “I wanted to […]

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"A Brighter Future, Day by Day"

January, 2012 – It’s always difficult being a first-time parent – but when your baby is diagnosed with a blood disorder like thalassemia, life is immediately even harder. That’s what happened when Teresa and Joe Turchi’s four-and-a-half month old daughter Gabriella was diagnosed with thalassemia at the Children’s Hospital of Philadelphia. “We were devastated and […]

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2012 Miracle Plunge Benefits CAF and Two Other Worthwhile Causes

January 11, 2012 – One quick dip in the ocean can strengthen the fight against thalassemia, support specialized healthcare for kids AND help children with developmental disabilities help themselves.   That quick dip might be a little on the chilly side, as it’s part of the New Jersey Elks’ 5th Annual Miracle Plunge “Freezin’ for […]

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Let Your Heart Dance in Staten Island on February 11

January 12, 2012 – There’s no better way to celebrate Valentine’s Day – or to simply have a really splendid evening – than by attending the Let Your Heart Dance on February 11. This annual event from the CAF New Jersey chapter, held at the beautiful Staten Island Hilton Garden Inn (1100 South Avenue), is […]

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Meatballs and Martinis Benefit for CAF on January 16

January 5, 2012 – Join CAF’s North Jersey chapter for a festive evening at the “Meatballs & Martinis Happy Hour” at Anthony’s Coal Fired Pizza on January 16. For a $30 donation, adults receive appetizers, a complimentary martini and discounted martini and vodka drinks; children are welcome at the Kid’s Table for just $10. North […]

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