July 5, 2012 – Summer is here in force, but you can beat the heat and support the fight against thalassemia at the same time – simply by attending the 2012 “Cocktails on the Green” reception at Patrizia’s of Bayside (formerly Valentino’s on the Green) from 6:30-10:30 p.m. on Saturday, July 14. Gianna and Chazz […]
June 12, 2012 – Robert Mannino knows more about blood transfusions than most people. Diagnosed with thalassemia when he was just six months old, he’s spent much of his life in clinics, hooked up to transfusion machines for treatment of the disorder Now 20 years old and a junior at the Georgia Institute of Technology […]
May 31, 2012 – The Cooley’s Anemia Foundation strongly supports the consensus recommendations of the Thalassemia Clinical Research Network (TCRN) to obtain at least annual MRI for hepatic iron and cardiac iron T2* MRI beginning at age 10 years (with more frequent measurements considered for patients with cardiac T2* <10-20 ms) and an annual liver […]
May 1, 2012 – Verdi’s of Westbury was the place to be on April 3, as evidenced by the almost 300 people who packed the catering hall to support the New York State OSIA Dine Around for Cooley’s Anemia. This was the biggest attendance ever for this wonderful annual event, and it meant that the Dine Around […]
April 13, 2012 – The annual Good Friday Dinner Dance by the Queens chapter of CAF is one wonderful party. Below we share some pictures from this year’s festivities.
April 6, 2012 – My name is Aaron Cheng, and I’ve just completed my first semester of college at Harvard University. I don’t remember when I was diagnosed with beta thalassemia major, which is also known as Cooley’s Anemia, but my parents tell me it was when I was around one year old. We were […]
March 19, 2012 – It’s been a mild winter in the East, but the official start of spring for many will be on April 24 – when the Staten Island chapter of CAF presents its always-anticipated annual Charity Golf Outing! Held on the beautiful greens of the South Shore Golf Club, this spectacular event is […]
March 16, 2012 – CAF has announced its 2012 Patient~Family Conference, to be held June 29 to July 1 in Cambridge, MA. The Theme of this year’s Conference is “Fe: Less is Better” (Fe being the symbol for Iron) and attendees can look forward to two full days of Conference sessions, overflowing with important information, […]
March 15, 2012 – Shire plc, the global specialty biopharmaceutical company, announces that it has signed an agreement to acquire FerroKin BioSciences, Inc., for an upfront payment of $100 million, payable in cash at closing, plus potential post-closing milestone payments of up to $225 million, depending upon the achievement of certain clinical development, regulatory and […]
February 28, 2012 – Care Walks can be set up for just you and your family and friends or they can be larger “organized” Walks for many more people. Following is a list of some organized Care Walks, in case you would like to join up with others who may be in your area. <p […]
