By Dean Hernan – Treasurer, CAF National Board of Directors; Public Accountant, Katz Viola Lebenhart & Mauro, LLP; Chief Financial Officer, The Forum Group The new Tax Cuts and Job Act is upon us, effective for the year 2018, and will bring many changes in the tax code. This new tax bill will shrink the number […]
December 6, 2018 – The 2018 American Society of Hematology meeting was held in San Diego Nov. 30 – Dec. 4. Below are some of the highlights of the meeting which are of particular interest to the thalassemia community. Note: The following is largely drawn from ongoing trials or includes information that is still being […]
November 26, 2018 – The Cooley’s Anemia Foundation (CAF) is thrilled to announce a brand new initiative – the “Push-Ups to Fight Thalassemia Challenge.” Thanksgiving is over, but further feast-filled holidays are still ahead. The end of the year brings about wonderful opportunities to spend time with loved ones and friends – but all that […]
November 1, 2018 – CAF is proud to celebrate National Adoption Month throughout the month of November! Our goals are to bring attention to the need for permanent families for children with thalassemia both in the U.S. and globally, to provide the greater community with resources and information on thalassemia adoption, and to share the stories […]
October 10, 2018 – This past Saturday, a group of caring motorcyclists and families came together for the Iron Ride Poker Run in honor of Nicholas, an amazing 3-year-old boy with thalassemia. Riders followed a scenic trail in Ewing, NJ, collecting playing cards along the way. Once they reached Charter Farms, the winning poker hand […]
October 8, 2018 – The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia. The awards are in 3 categories: Support for Ongoing Clinical Research in Thalassemia; Clinical Trials in Thalassemia Cell and Gene Therapy; and Research Fellowships. Details are as follows: SUPPORT FOR ONGOING CLINICAL RESEARCH IN […]
October 1, 2018 – Join the CAF Staten Island Chapter for the Royal Tea Luncheon fundraiser on Sunday, October 28 from 12-4pm at the Staten Island Hilton Garden Inn. Be sure to wear your best fascinator hat to participate in the Royal Hat Contest! To RSVP, contact Terri Difilippo at streganonaterri@aol.com or call the CAF Staten […]
September 28, 2018 – The Cooley’s Anemia Foundation is accepting applications for its 2018-2019 Patient Incentive Awards, as well as the 2018-2019 Educational Incentive Awards for Children of Individuals with Thalassemia. These awards are open to thalassemia patients, as well as children of thalassemia patients, who are U.S. residents and are currently pursuing education in a […]
September 25, 2018– ApoPharma welcomes submissions to its 15th Annual Iron Warriors Art Contest until the November 19, 2018 deadline. The goal of this contest is to raise awareness about thalassemia, to encourage the community to chelate, and to give the thalassemia community around the world the opportunity to share their artistic expression and inspire others. Check […]
September 19, 2018 – Save the Date! The CAF Patient-Family Conference will take place from July 12-14, 2019 in San Francisco, CA. Details to come. Click here to download Save the Date announcement.
