An Open Letter of Thanks to Our Order Sons of Italy Family

Wednesday, January 25th, 2017

      January 20, 2017 Dear Friends, A Happy and Healthy New Year to you and your families. I just wanted to take a few moments to give you a special “thank you” from the Cooley’s Anemia Foundation (CAF). For over 40 years, you have been the “rock and backbone” of CAF, supporting us, […]

2017 CAF National President’s State of the Foundation Letter

Friday, January 13th, 2017

January 12, 2017 – CAF National President Anthony J. Viola shares his thoughts on the state of CAF as the new year begins: A Happy and a Healthy New Year to our Cooley’s Anemia Foundation Family, Friends, and Supporters. 2017 (wow, lol) is upon us and as I am coming to the end of my […]

CAF Awards $202,500 Funding in Medical Research Fellowships

Tuesday, September 27th, 2016

September 27, 2016- CAF is pleased to announce that four new Cooley’s Anemia Foundation Medical Research Fellowships and one renewal Fellowship have been awarded for the 2016-2017 grant cycle. In addition, this year we have awarded a new Clinical Research Grant to support ongoing clinical research in thalassemia. The total amount of funding for the […]

Why The Daileys Care Walk: Thalassemia Doesn’t Define You

Tuesday, February 16th, 2016

Throughout this Care Walk season, we will be highlighting stories of some of the amazing people whose efforts make this event a success for the Cooley’s Anemia Foundation and all the patients we serve. With so many Care Walks taking place on the same day, we hope that these stories will invite us all in […]

Interview: Dr. Maria Domenica Cappellini on Clinical Features of Thalassemia

Wednesday, December 9th, 2015

  Dr. Maria Domenica Cappellini presented at the 10th Cooley’s Anemia Symposium on “Clinical Features of Thalassemia.” CAF spoke with her at the Symposium about this topic; that interview can be viewed above. The range of topics presented over the course of the Symposium was impressive and indicates just how active and vital the thalassemia […]

Join CAF in Making Giving Tuesday a Day to Remember

Monday, November 30th, 2015

December 1, 2015 – Today is Giving Tuesday, the online community’s annual day for making charitable donations to causes that inspire and move us to make a difference – like the Cooley’s Anemia Foundation.  We hope that  today you will let people you know and love know that CAF matters to you. Several members of […]

10th Cooley’s Anemia Symposium a Resounding Success

Wednesday, October 28th, 2015

October 28, 2015 – A packed house of 240 clinicians, scientists, nurses, industry, consumers and other participants attended the 10th Cooley’s Anemia Symposium in Rosemont, IL from October 18-22. This invaluable meeting, presented by the Cooley’s Anemia Foundation (CAF) and the New York Academy of Sciences(NYAS)  is an anticipated and milestone event held only every […]

CAF’s $300,000 Medical Research Funding Moves Field Forward

Tuesday, August 26th, 2014

August 25, 2014 – New explorations in gene editing. Connections between thyroid hormones and hemoglobin. Efficiency and safety in gene therapy. Using a protein to control iron. These are the ideas behind the four exciting new studies being funded by the Cooley’s Anemia Foundation this year. These new fellowships join four renewed fellowships and a […]

Teens Lend Their Helping Hands to Fight Thalassemia

Tuesday, July 29th, 2014

July 29, 2014 – Two amazing teen-age girls who until recently had never heard of Cooley’s anemia are now among our greatest allies in the fight against thalassemia. Amanda Rodriguez, 15, and Nairobi Mendez, 18, are friends who were living in Lodi, NJ. This spring, one of Amanda’s friends re-tweeted a post from Lisa Vigliotti […]

Why I Care Walk: Melissa Mannara

Thursday, May 1st, 2014

April 29, 2014 – Melissa Mannara is one of the captains of Team Jovi, which is organizing a wonderful Care Walk in Rochester on May 4.  (You can support it and learn more about it by clicking here!)  CAF spoke with Melissa about why she is putting so much effort into a Care Walk this […]