Welcome to the Cooley’s Anemia Foundation blog!

This blog will be a place for the Cooley’s Anemia Foundation to share information from and thoughts of invited members of the thalassemia community. 

Patient Profile: Lisa Guidice, Proud Jersey Girl #ThrivingWithThal

Tuesday, February 21st, 2017

February 21, 2017- Lisa Falco Guidice is an active member of the CAF patient community, and we thank her for sharing her inspiring story. I am a proud Jersey girl, born in Summit and raised in Florham Park.  After being diagnosed with thalassemia major at 6 months old, my mother did everything she could to […]

CAF Westchester-Rockland Chapter Hosts “Night At The Races” Benefit on April 1

Monday, February 13th, 2017

February 13, 2017 – The CAF Westchester-Rockland Chapter welcomes all to experience the annual “Night at the Races” benefit on April 1st, 2017. This fun-filled event features a buffet dinner, open bar and raffle prizes. Guests will bet on the video horse races throughout the evening. The event will begin at 7pm at the V.I,P, […]

Janelle Trieu Selected for 2016 CAF-ApoPharma Distinguished Scholar Award

Wednesday, January 11th, 2017

January 11, 2017- The Cooley’s Anemia Foundation is pleased to announce that Janelle Trieu has been named recipient of the 2016 CAF-ApoPharma Distinguished Scholar Award. The Award is presented to U.S. individuals with a clinically significant form of thalassemia who have chosen to pursue postgraduate doctoral level studies in medicine or science. Janelle is currently […]

Cosmic Bowling Night with Staten Island Chapter on February 4

Wednesday, January 4th, 2017

January 4, 2017- CAF Staten Island Chapter invites all to attend the Cosmic Bowling Night fundraiser on Saturday, February 4th at Rab’s Country Lanes from 9:30pm to 12am. Tickets are $30 per person and include shoe rental, bowling, pizza and soda. Prizes will be awarded to the top bowlers. Participants are encouraged to help raise […]

CAF Suffolk Chapter Hosts Indoor Putting Fundraiser for Thalassemia

Tuesday, December 13th, 2016

December 13, 2016- The CAF Suffolk Chapter welcomes all to join the 13th Annual Lunch and Indoor Putting Contest! This event will take place at Butterfield’s in Hauppauge, NY on January 30, 2017. The top three teams in the putting contest will walk away with cash prizes! The winning team will receive a $1,000 cash prize, […]

Save the Date! 2017 TIF Conference

Wednesday, November 30th, 2016

November 11, 2016 – Mark your calendars! The 14th International Conference on Thalasseamia & Haemoglobinopathies, as well as the 16th TIF International Conference for Patients & Parents, will take place in Germany sometime in October/November 2017. Exact dates to be announced. Who should attend: Patients and Patient/Parent Organizations Healthcare professionals/medical specialists Academics/researchers Policy-makers at national, […]

Save the Date! CAF 4th Annual Gala

Tuesday, October 25th, 2016

      Save the Date: Cooley’s Anemia Foundation 4th Annual Gala Thursday, June 8, 2017 The Lighthouse at Chelsea Piers For more information, contact Darlene@suffolkcaf.com  

CAF Accepting Applications for 2017 Medical Research Fellowships and Grants

Tuesday, October 4th, 2016

October 4, 2016 – The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia.  The awards are in 3 categories: Support for Ongoing Clinical Research in Thalassemia;  Clinical Trials in Thalassemia Cell and Gene Therapy;  and Research Fellowships. Details are as follows: SUPPORT FOR ONGOING CLINICAL RESEARCH […]

CAF Welcomes New Staff Member

Tuesday, October 4th, 2016

October 4, 2016 – CAF is happy to announce a new addition to our staff. Henry Ackermann joined us this week as our National Development Director. Henry Ackermann Henry Ackermann will be leading our national fundraising efforts by creating and implementing a new development plan with a vision for the Foundation’s short term and long term success. Henry […]

Swing Dance Fundraiser and Billy Joel Raffle with Staten Island Chapter on October 23

Wednesday, September 28th, 2016

September 28, 2016- CAF Staten Island Chapter is thrilled to invite all to attend the “At the Hop” swing dance fundraiser on Sunday, October 23 at the Staten Island Hilton Garden Inn from 12pm-4pm. This event features live music from The Dreamers Swing Band, a cash bar, and a dance floor to show off your swingin’ moves! […]

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