February 21, 2017- Lisa Falco Guidice is an active member of the CAF patient community, and we thank her for sharing her inspiring story. I am a proud Jersey girl, born in Summit and raised in Florham Park. After being diagnosed with thalassemia major at 6 months old, my mother did everything she could to […]
Welcome to the Cooley’s Anemia Foundation blog!
This blog will be a place for the Cooley’s Anemia Foundation to share information from and thoughts of invited members of the thalassemia community.
February 13, 2017 – The CAF Westchester-Rockland Chapter welcomes all to experience the annual “Night at the Races” benefit on April 1st, 2017. This fun-filled event features a buffet dinner, open bar and raffle prizes. Guests will bet on the video horse races throughout the evening. The event will begin at 7pm at the V.I,P, […]
January 11, 2017- The Cooley’s Anemia Foundation is pleased to announce that Janelle Trieu has been named recipient of the 2016 CAF-ApoPharma Distinguished Scholar Award. The Award is presented to U.S. individuals with a clinically significant form of thalassemia who have chosen to pursue postgraduate doctoral level studies in medicine or science. Janelle is currently […]
January 4, 2017- CAF Staten Island Chapter invites all to attend the Cosmic Bowling Night fundraiser on Saturday, February 4th at Rab’s Country Lanes from 9:30pm to 12am. Tickets are $30 per person and include shoe rental, bowling, pizza and soda. Prizes will be awarded to the top bowlers. Participants are encouraged to help raise […]
December 13, 2016- The CAF Suffolk Chapter welcomes all to join the 13th Annual Lunch and Indoor Putting Contest! This event will take place at Butterfield’s in Hauppauge, NY on January 30, 2017. The top three teams in the putting contest will walk away with cash prizes! The winning team will receive a $1,000 cash prize, […]
November 11, 2016 – Mark your calendars! The 14th International Conference on Thalasseamia & Haemoglobinopathies, as well as the 16th TIF International Conference for Patients & Parents, will take place in Germany sometime in October/November 2017. Exact dates to be announced. Who should attend: Patients and Patient/Parent Organizations Healthcare professionals/medical specialists Academics/researchers Policy-makers at national, […]
Save the Date: Cooley’s Anemia Foundation 4th Annual Gala Thursday, June 8, 2017 The Lighthouse at Chelsea Piers For more information, contact Darlene@suffolkcaf.com
October 4, 2016 – The Cooley’s Anemia Foundation is accepting applications for medical research grants and fellowships in areas related to thalassemia. The awards are in 3 categories: Support for Ongoing Clinical Research in Thalassemia; Clinical Trials in Thalassemia Cell and Gene Therapy; and Research Fellowships. Details are as follows: SUPPORT FOR ONGOING CLINICAL RESEARCH […]
October 4, 2016 – CAF is happy to announce a new addition to our staff. Henry Ackermann joined us this week as our National Development Director. Henry Ackermann Henry Ackermann will be leading our national fundraising efforts by creating and implementing a new development plan with a vision for the Foundation’s short term and long term success. Henry […]
September 28, 2016- CAF Staten Island Chapter is thrilled to invite all to attend the “At the Hop” swing dance fundraiser on Sunday, October 23 at the Staten Island Hilton Garden Inn from 12pm-4pm. This event features live music from The Dreamers Swing Band, a cash bar, and a dance floor to show off your swingin’ moves! […]