August 18, 2017 – JADENU Sprinkle (DFX) granules are now available through Specialty Pharmacies. At this time, only the 180 mg and 360 mg doses are available. To learn more, download the JADENU Sprinkle granule brochure at this link: https://www.thalassemia.org/wp-content/uploads/2017/08/JADENU-Sprinkle-Brochure.pdf.
August 15, 2017 – CAF thanks Greenwich Time for helping raise awareness about thalassemia through this interview with Peter Chieco, former CAF National President and current President of the Westchester, Rockland and Fairfield County Chapter of CAF. Mr. Chieco has been a selfless volunteer for nearly three decades, and we thank him for his unwavering […]
August 4, 2017 – CAF is pleased to make available slides from many of the presentations from the 2017 Patient-Family Conference held July 7-9, 2017 in Hyattsville MD. PDFs of the presentations may be accessed by clicking on the links below. Please mark your calendars for July 6-8, 2018, the dates for the 2018 Patient-Family […]
August 2, 2017 – Early bird registration has been extended until August 20 for the 14th International Conference on Thalasseamia & Haemoglobinopathies and the 16th TIF International Conference for Patients & Parents. This conference will take place in Thessaloniki, Greece from November 17-19, 2017. To register, visit tifevents.org. Participants are encouraged to register as soon as […]
August 1, 2017 – CAF is happy to announce the dates for our 2018 Patient-Family Conference, to be held in Atlanta, Georgia from July 6-8. We will share additional details as they become available. We hope you will be able to join us next year! Update: Register now at www.docbw.com/meet/caf/.
July 27, 2017 – On November 17-19, 2017 the Thalassaemia International Federation will hold its 14th International Conference on Thalassaemia & Haemoglobinopathies and 16th TIF International Conference for Patients & Parents in Thessaloniki, Greece. The Cooley’s Anemia Foundation is pleased to make available a limited amount of funding for up to 10 U.S. thalassemia patients or […]
PLEASE NOTE: DEADLINE FOR APPLICATIONS HAS BEEN EXTENDED TO OCTOBER 21, 2017. July 21, 2017- The Cooley’s Anemia Foundation is accepting applications from individuals with thalassemia for the 2017 CAF ApoPharma Distinguished Scholar Award. The CAF-ApoPharma Distinguished Scholar Award, which was established in 2014, is made possible through a grant from pharmaceutical manufacturer ApoPharma. CAF […]
July 19, 2017- Bluebird bio has now initiated the gene therapy trial in transfusion-dependent beta-thalassemia patients with the B0/B0 genotype. The Lurie Children’s Hospital in Chicago is currently enrolling patients for this study. Further information about this trial can be found at: https://clinicaltrials.gov/ct2/show/NCT03207009?cond=thalassemia+lentiglobin&rank=4 The Cooley’s Anemia Foundation provides information on select clinical trials that […]
July 19, 2017- The 2017 CAF Patient-Family Conference was a true success, with a record-breaking attendance of over 300 members of the U.S. thalassemia community. This annual Conference provides up-to-date information on thalassemia treatment, and gives members of the thalassemia community an opportunity to get to know each other and share experiences. Browse the gallery […]
