Month: March 2017

Many 7-Eleven Stores in Long Island Collecting Donations for CAF

April 12, 2017- This year’s Long Island Care Walks have a new corporate sponsor – United 7-Eleven Franchisees of Long Island and New York (UFOLI). Many 7-Eleven stores all over Long Island have posters and coin boxes in support of Cooley’s Anemia Foundation (which will stay all year beyond the Care Walks). Since they are […]

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Registration Now Open for 2017 Patient-Family Conference

March 27, 2017 – Registration is now open for CAF’s 2017 Patient-Family Conference! This year’s Conference will be held from July 7-9 at the College Park Marriott Hotel and Conference in Hyattsville, MD. The 2017 Patient-Family Conference is a unique opportunity for U.S. individuals with thalassemia and their family members (parents, siblings, spouses, etc.) to meet other […]

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Meet Brianna: High School Senior and Care Walk Captain

March 20, 2017- Throughout this Care Walk season, we are highlighting stories of some of the amazing people whose efforts make this event a success for the Cooley’s Anemia Foundation and all the patients we serve. With so many Care Walks taking place on the same day, we hope that these stories will invite us […]

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Checklists References

Checklist: Guidelines for Managing Transfusion Therapy for Thalassemia Cazzola, M., Borgna-Pignatti, C., Locatelli, F., Ponchio, L., Beguin, Y. & De Stefano, P. (1997) A moderate transfusion regimen may reduce iron loading in beta-thalassemia major without producing excessive expansion of erythropoiesis. Transfusion, 37, 135-140. Cazzola, M., De Stefano, P., Ponchio, L., Locatelli, F., Beguin, Y., Dessi, […]

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NYS OSIA Dine Around for CAF on April 4

March 9, 2017- The New York State Grand Lodge of OSIA (Order Sons of Italy in America) welcomes all to attend the Culinary Classico “Year 2017 Dine Around” to benefit Cooley’s Anemia Foundation. The event will take place on April 4 at Verdi’s Catering Hall of Westbury from 7-10pm. This fun-filled night features food, wine, and […]

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Camps for Children With Thalassemia

March 2, 2017- CAF is happy to provide information about camps for children with serious medical conditions including thalassemia. This is provided for informational purposes so that parents/patients can know about possible options they may wish to consider. CAF does not endorse one camp over another. The Painted Turtle The Painted Turtle is a camp […]

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