March 7, 2016 – Registration is now open for CAF’s 2016 Patient-Family Conference! For 2016, this always-anticipated annual event will be held July 8-10 at the Hilton San Diego Mission Valley in San Diego, CA. Entitled “Reaching New Heights,” the 2016 Conference is a unique opportunity for U.S. individuals with thalassemia and their family members (parents, […]
March 31, 2016 – Since their first Care Walk last year, the Michelangelo family has invested a great deal of time and heart to serving the thalassemia community. They have held several fundraisers in their hometown of Boston, including a popular meat raffle event during which donors can bid on meat baskets from the local […]
We are in the process of gathering information on public Care Walks. Unless otherwise indicated, the Care Walks below are scheduled for Sunday, May 1, 2016. If you are organizing a Care Walk for CAF and want to have it listed here, please contact mary@thalassemia.org. Register for a Care Walk or support a Walker or Team […]
March 13, 2016 – Staten Island’s South Shore Golf Club is the place to be on Wednesday, May 4 as the Staten Island chapter’s 2016 Cooley’s Anemia Golf Outing takes to the greens. Registration and lunch are at 11:00, in advance of the 12:30 shotgun start. Cocktails and dinner follow at 6:00. Want more? There’s also […]
March 11, 2016 Register for 2016 Care Walk at http://bit.ly/cafcarewalk! For a list of Care Walk Locations, click here.
March 9, 2016 – The Thalassaemia International Federation (TIF) is seeking U.S. patients to help test two new projects geared toward the thalassemia community. The projects, the ThaliMe app and a Thal e-Course, are described below. Those interested in participating or learning more should contact TIF at thalassaemia@cytanet.com.cy. ThaliMe: TIF seeks 10 patients to pilot […]
March 6, 2015 – San Diego-based La Jolla Pharmaceutical Company is currently seeking qualified patients for consideration in their trial in Patients at Risk for Iron Overload using its novel formulation of hepcidin (LJPC-401). Hepcidin, an endogenous peptide hormone, is a naturally occurring regulator of iron absorption and distribution. Manipulation of hepcidin has the potential to […]
February 16, 2016 – Throughout this Care Walk season, we will be highlighting stories of some of the amazing people whose efforts make this event a success for the Cooley’s Anemia Foundation and all the patients we serve. With so many Care Walks taking place on the same day, we hope that these stories will […]
February 12, 2016 – The Staten Island chapter of CAF is holding its 2nd Annual Zumba Fund Raiser for CAF on Saturday, February 27 from 11:30 am to 12:30 pm. Come to Lucille Roberts at 430 89th Street in Bay Ridge, Brooklyn for an hour of sensational Zumba-ing for a great cause! You can download […]
February 1, 2016 – Below, CAF National President Anthony Viola shares his “State of the Foundation” message, looking back at some of the highlights of the past 8 years and expressing thoughts on moving forward. We thank Tony for his deep commitment to the fight against thalassemia and his strong leadership as the CAF National President. […]
