Pace’s Stakes Benefit: A Night at the Races

Thursday, September 15th, 2016

September 15, 2016- CAF welcomes all to join our Suffolk Chapter for the Pace’s Stakes Benefit for CFK and Cooley’s Anemia. This event will take place at Pace’s Steakhouse on the evening of November 15, 2016. The event features a cocktail hour complete with lobster, shrimp, clams, oysters, a pasta station and an open bar. Steak with […]

The Man Behind the Name: Thomas Benton Cooley, M.D.

Tuesday, September 13th, 2016

September 19, 2016 – People often ask why the major form of beta thalassemia is known as Cooley’s anemia. Beta thalassemia major is widely referred to as Cooley’s anemia in reference to Dr. Thomas Benton Cooley, the renowned researcher who discovered the disorder. Thomas Benton Cooley was an American physician specializing in pediatrics and hematology. […]

Slides from 2016 Patient-Family Conference

Tuesday, August 30th, 2016

August 29, 2016 – This year’s Patient-Family Conference was a notable success, with much valuable information presented over the course of the two days. CAF is pleased to make available in pdf form some of the information presented at the Conference. In order to download the pdfs, click on the title of each presentation (below). Nutrition for […]

Information for U.S. Thalassemia Patients Travelling Abroad

Thursday, August 4th, 2016

August 4, 2016 – The Cooley’s Anemia Foundation recommends that individuals with thalassemia who intend on travelling internationally inform their doctor about travel plans. With careful planning, your doctor can create a transfusion schedule that will help you avoid emergencies during your trip. Don’t forget that this careful planning should include the transfusion upon your […]

CAF 800 Number Has Been Discontinued

Thursday, August 4th, 2016

August 3, 2016 – CAF has discontinued its 800 phone number, due to problems with people hacking into it. If you wish to reach CAF, please call 212-279-8090 instead. We apologize for any inconvenience. Thank you.

Reminders About Infection and Thalassemia

Thursday, July 28th, 2016

July 28, 2016 – The recent death of an adult with thalassemia, apparently from sepsis (overwhelming bacterial infection) has led to some vigorous discussions in the thalassemia community.  The discussions reveal some of the clear advantages, but also disadvantages, of social media.  An advantage is that word about important events spreads rapidly. Unfortunately, news spreads […]

Q&A Concerning Thalassemia and Renal Fanconi Syndrome

Thursday, July 28th, 2016

July 28, 2016 – CAF recently learned of a thalassemia patient with a kidney problem called Renal Fanconi Syndrome, likely due to deferasirox.  We would like to answer several questions that often arise about this problem.  Dr. Ellis Neufeld, Chair of CAF’s Medical Advisory Board, has provided answers to the following questions. What is Renal Fanconi Syndrome?  […]

North Salem Lions Golf Outing to Benefit CAF

Thursday, July 21st, 2016

July 14th, 2016- CAF is proud to announce the North Salem Lions 49th Anniversary & Golf Outing, which will take place on August 29th, 2016. The North Salem Lions Club will be generously donating proceeds from the outing to CAF as well as to Services for the Blind and Visually Impaired (VISIONS). The golf outing will […]

Patient Applications Being Accepted for 2016 CAF-ApoPharma Distinguished Scholar Award

Sunday, July 10th, 2016

July 10, 2016 – The Cooley’s Anemia Foundation is accepting applications from individuals with thalassemia for the 2016 CAF ApoPharma Distinguished Scholar Award. The CAF-ApoPharma Distinguished Scholar Award, which was established in 2014, is made possible through a grant from pharmaceutical manufacturer ApoPharma. CAF will award up to two scholarships to a U.S. citizen(s) with […]

Golf Outing & Poker Tournament Also Features 50-50 Raffle and “Hamilton” Tickets Raffle

Wednesday, July 6th, 2016

July 6, 2016 – CAF is thrilled to announce that we are one of the beneficiaries of the Milana Family Foundation’s upcoming Golf Outing and Poker Tournament. In addition to golf and poker, this event also features both a 50/50 raffle and a raffle for tickets to the red-hot Broadway musical “Hamilton.” The 1st Annual […]