September 15, 2016- CAF welcomes all to join our Suffolk Chapter for the Pace’s Stakes Benefit for CFK and Cooley’s Anemia. This event will take place at Pace’s Steakhouse on the evening of November 15, 2016. The event features a cocktail hour complete with lobster, shrimp, clams, oysters, a pasta station and an open bar. Steak with […]
September 19, 2016 – People often ask why the major form of beta thalassemia is known as Cooley’s anemia. Beta thalassemia major is widely referred to as Cooley’s anemia in reference to Dr. Thomas Benton Cooley, the renowned researcher who discovered the disorder. Thomas Benton Cooley was an American physician specializing in pediatrics and hematology. […]
August 29, 2016 – This year’s Patient-Family Conference was a notable success, with much valuable information presented over the course of the two days. CAF is pleased to make available in pdf form some of the information presented at the Conference. In order to download the pdfs, click on the title of each presentation (below). Nutrition for […]
August 4, 2016 – The Cooley’s Anemia Foundation recommends that individuals with thalassemia who intend on traveling internationally inform their doctor about travel plans. With careful planning, your doctor can create a transfusion schedule that will help you avoid emergencies during your trip. Don’t forget that this careful planning should include the transfusion upon your […]
August 3, 2016 – CAF has discontinued its 800 phone number, due to problems with people hacking into it. If you wish to reach CAF, please call 212-279-8090 instead. We apologize for any inconvenience. Thank you.
July 28, 2016 – The recent death of an adult with thalassemia, apparently from sepsis (overwhelming bacterial infection) has led to some vigorous discussions in the thalassemia community. The discussions reveal some of the clear advantages, but also disadvantages, of social media. An advantage is that word about important events spreads rapidly. Unfortunately, news spreads […]
July 28, 2016 – CAF recently learned of a thalassemia patient with a kidney problem called Renal Fanconi Syndrome, likely due to deferasirox. We would like to answer several questions that often arise about this problem. Dr. Ellis Neufeld, Chair of CAF’s Medical Advisory Board, has provided answers to the following questions. What is Renal Fanconi Syndrome? […]
July 14th, 2016- CAF is proud to announce the North Salem Lions 49th Anniversary & Golf Outing, which will take place on August 29th, 2016. The North Salem Lions Club will be generously donating proceeds from the outing to CAF as well as to Services for the Blind and Visually Impaired (VISIONS). The golf outing will […]
July 10, 2016 – The Cooley’s Anemia Foundation is accepting applications from individuals with thalassemia for the 2016 CAF ApoPharma Distinguished Scholar Award. The CAF-ApoPharma Distinguished Scholar Award, which was established in 2014, is made possible through a grant from pharmaceutical manufacturer ApoPharma. CAF will award up to two scholarships to a U.S. citizen(s) with […]
July 6, 2016 – CAF is thrilled to announce that we are one of the beneficiaries of the Milana Family Foundation’s upcoming Golf Outing and Poker Tournament. In addition to golf and poker, this event also features both a 50/50 raffle and a raffle for tickets to the red-hot Broadway musical “Hamilton.” The 1st Annual […]
