Archive for July, 2016

Reminders About Infection and Thalassemia

Thursday, July 28th, 2016

July 28, 2016 – The recent death of an adult with thalassemia, apparently from sepsis (overwhelming bacterial infection) has led to some vigorous discussions in the thalassemia community.  The discussions reveal some of the clear advantages, but also disadvantages, of social media.  An advantage is that word about important events spreads rapidly. Unfortunately, news spreads […]

Q&A Concerning Thalassemia and Renal Fanconi Syndrome

Thursday, July 28th, 2016

July 28, 2016 – CAF recently learned of a thalassemia patient with a kidney problem called Renal Fanconi Syndrome, likely due to deferasirox.  We would like to answer several questions that often arise about this problem.  Dr. Ellis Neufeld, Chair of CAF’s Medical Advisory Board, has provided answers to the following questions. What is Renal Fanconi Syndrome?  […]

North Salem Lions Golf Outing to Benefit CAF

Thursday, July 21st, 2016

July 14th, 2016- CAF is proud to announce the North Salem Lions 49th Anniversary & Golf Outing, which will take place on August 29th, 2016. The North Salem Lions Club will be generously donating proceeds from the outing to CAF as well as to Services for the Blind and Visually Impaired (VISIONS). The golf outing will […]

Patient Applications Being Accepted for 2016 CAF-ApoPharma Distinguished Scholar Award

Sunday, July 10th, 2016

July 10, 2016 – The Cooley’s Anemia Foundation is accepting applications from individuals with thalassemia for the 2016 CAF ApoPharma Distinguished Scholar Award. The CAF-ApoPharma Distinguished Scholar Award, which was established in 2014, is made possible through a grant from pharmaceutical manufacturer ApoPharma. CAF will award up to two scholarships to a U.S. citizen(s) with […]

Golf Outing & Poker Tournament Also Features 50-50 Raffle and “Hamilton” Tickets Raffle

Wednesday, July 6th, 2016

July 6, 2016 – CAF is thrilled to announce that we are one of the beneficiaries of the Milana Family Foundation’s upcoming Golf Outing and Poker Tournament. In addition to golf and poker, this event also features both a 50/50 raffle and a raffle for tickets to the red-hot Broadway musical “Hamilton.” The 1st Annual […]